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改善盲人或视力低下者的医疗保健体验:焦点小组的建议。

Improving health care experiences of persons who are blind or have low vision: suggestions from focus groups.

作者信息

O'Day Bonnie L, Killeen Mary, Iezzoni Lisa I

机构信息

Cherry Engineering Support Services Inc, McLean, Va, USA.

出版信息

Am J Med Qual. 2004 Sep-Oct;19(5):193-200. doi: 10.1177/106286060401900503.

Abstract

Persons who are blind or have low vision face special challenges in obtaining care that is safe, effective, timely, and patient centered. To explore perceptions of care and recommendations for improvements, we conducted 8 interviews with experts and 2 focus groups with 19 persons, all of whom are blind or have low vision. Interviewees perceived that they confront special barriers to care because of being blind or having low vision. Barriers fell into 4 broad categories: basic respect, including concerns about physicians thinking they cannot participate fully in their own care; communication barriers, including difficulties interacting with physicians and office staff; physical access barriers, including difficulties getting to and around physicians' offices; and information barriers, including receiving written materials in inaccessible formats (eg, not in Braille, large print, or audiotape). Using common courtesy and individualized communication techniques, physicians and office staff could improve health care experiences of blind and low-vision patients.

摘要

失明或视力低下的人在获得安全、有效、及时且以患者为中心的护理方面面临特殊挑战。为了探究对护理的看法以及改进建议,我们对专家进行了8次访谈,并与19名失明或视力低下的人进行了2次焦点小组讨论。受访者认为,由于失明或视力低下,他们在接受护理时面临特殊障碍。障碍主要分为四大类:基本尊重,包括担心医生认为他们无法充分参与自身护理;沟通障碍,包括与医生和办公室工作人员互动困难;身体可达性障碍,包括前往医生办公室及在办公室周围行动不便;以及信息障碍,包括收到格式无法获取的书面材料(例如,不是盲文、大字印刷体或录音带形式)。医生和办公室工作人员通过使用基本礼貌和个性化沟通技巧,可以改善失明和视力低下患者的医疗体验。

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