McCann Terence V, Clark Eileen
School of Nursing and Midwifery, Victoria University, Melbourne City, MC 8001, Australia.
Issues Ment Health Nurs. 2004 Dec;25(8):783-98. doi: 10.1080/01612840490506365.
For many individuals, schizophrenia is a severe and enduring illness. While nurses need to understand the symptomatology of the illness in order to provide specific care and treatment, it also is important to find out how people with schizophrenia embody the illness. Capturing this knowledge will help nurses to provide more appropriate care to these individuals. This paper, which is taken from a larger qualitative study, reports the lived experience of young adults with schizophrenia. Three main themes emerged from the data, which highlighted how these individuals found meaning in schizophrenia. The first theme,"embodied temporality: illness as a catastrophic experience,"portrayed how schizophrenia affected participants' temporality or lived time. The second theme,"embodied relationality: illness as a mediator of social relationships,"reflected how the illness affected their relationships with others. The third theme,"embodied treatment: medications side effects as burdensome,"illustrated how the side effects of antipsychotic medications distorted the individual's perception of his or her body and how it compromised the ability to establish and maintain sexual relationships. The findings are important to mental health nurses because they highlight the need to be sensitive to how people with schizophrenia find meaning in their illness experience and to incorporate this knowledge into the care that they provide.
对许多人来说，精神分裂症是一种严重且持久的疾病。护士需要了解该疾病的症状学以便提供特定的护理和治疗，但了解精神分裂症患者如何体现这种疾病也很重要。掌握这些知识将有助于护士为这些患者提供更恰当的护理。本文取自一项更大规模的定性研究，报告了患有精神分裂症的年轻人的生活经历。数据中出现了三个主要主题，突出了这些个体如何在精神分裂症中找到意义。第一个主题是“体现的时间性：疾病作为一种灾难性经历”，描绘了精神分裂症如何影响参与者的时间性或生活时间。第二个主题是“体现的关系性：疾病作为社会关系的调解者”，反映了疾病如何影响他们与他人的关系。第三个主题是“体现的治疗：抗精神病药物的副作用成为负担”，说明了抗精神病药物的副作用如何扭曲个体对自己身体的认知，以及如何损害建立和维持性关系的能力。这些发现对心理健康护士很重要，因为它们强调了需要对精神分裂症患者如何在其疾病经历中找到意义保持敏感，并将这些知识纳入他们提供的护理中。
