McCormick Sabrina, Brody Julia, Brown Phil, Polk Ruth
Department of Sociology, Brown University, Providence, RI 02912, USA.
Int J Health Serv. 2004;34(4):625-46. doi: 10.2190/HPXB-9RK8-ETVM-RVEA.
Public involvement in health program planning has been taking place for many years, and has provided a precedent for the emergence of public involvement in research conducted since the early 1990s. Such involvement is now widely seen in breast cancer research, due to the large public concern and major social movement activity. This article reviews current practices and general models of public involvement in research and constructs a prototype. The authors interviewed researchers, program officers, and laypeople in order to understand the obstacles, processes, and benefits. They conclude that public involvement has major ramifications for the democratization of science and the construction of knowledge by teaching lay people about science and sensitizing researchers to concerns of the public. There is growing support on the part of scientists and government agents for public involvement.
公众参与健康项目规划已经开展多年，为20世纪90年代初以来公众参与研究的出现提供了先例。由于公众的高度关注和大规模社会运动的开展，这种参与如今在乳腺癌研究中广泛可见。本文回顾了公众参与研究的当前实践和一般模式，并构建了一个原型。作者采访了研究人员、项目官员和普通民众，以了解其中的障碍、过程和益处。他们得出结论，公众参与通过向普通民众传授科学知识并使研究人员对公众关注的问题保持敏感，对科学民主化和知识构建具有重大影响。科学家和政府机构对公众参与的支持也在不断增加。
