Sloan Jeff A, Scott-Findlay Shannon, Nemecek Anne, Blood Paul, Trylinski Cheryl, Whittaker Heather, El Sayed Samy, Clinch Jennifer, Khoo Kong
Faculty of Nursing, University of Manitoba.
Can Oncol Nurs J. 2004 Fall;14(4):224-32. doi: 10.5737/1181912x144224227.
This is the second in a series of articles from a line of research whose intent was to construct a complete history of interactions with the health care system. This paper provides details of the methods developed to collect and collate the scattered information regarding the event history (trajectory) that a cancer patient experiences in traveling through the Manitoba health care system from one year prior to diagnosis through to two years post-diagnosis. Survival data were obtained through 1994. Basic population data obtained from this work are also presented, including survival information through to four years post-diagnosis. Issues regarding standardized data recording and detail level of clinical events in the chart record are discussed. This part of the research demonstrates that diverse data sources in the health care system can be linked with a high degree of accuracy and completeness of data.
这是一系列研究文章中的第二篇，该系列研究旨在构建与医疗保健系统互动的完整历史。本文详细介绍了所开发的方法，用于收集和整理有关癌症患者在从诊断前一年到诊断后两年期间在曼尼托巴省医疗保健系统中经历的事件历史（轨迹）的分散信息。生存数据截至1994年。还呈现了从这项工作中获得的基本人口数据，包括诊断后四年的生存信息。讨论了图表记录中标准化数据记录和临床事件详细程度的问题。这部分研究表明，医疗保健系统中的各种数据源可以高度准确和完整地链接起来。
