Fiese Barbara H, Wamboldt Frederick S, Anbar Ran D
Department of Psychology, Syracuse University, Syracuse, New York 13244, USA.
J Pediatr. 2005 Feb;146(2):171-6. doi: 10.1016/j.jpeds.2004.08.083.
To develop a reliable measure of asthma management routines and examine its association with health care utilization, medical adherence, and quality of life.
Families (n = 153) with a child with asthma, drawn from two sites, participated in the study. Parents completed the Asthma Routines Questionnaire, Adherence to Clinical Trials interview, Functional Severity of Asthma Questionnaire, and Caregiver Quality of Life. Children completed the Pediatric Quality of Life. Electronic monitoring of medication use over a period of 12 months was available for children at one study site.
A principal component factor analysis revealed two dimensions to the Asthma Routines Questionnaire: Medication Routines and Routine Burden. Medication Routines were related to medical adherence and to health care utilization. Routine Burden was related to caregiver and child quality of life.
The Asthma Routine Questionnaire holds promise as a reliable assessment of family practices related to medication use. The emotional burden of daily care can be distinguished from medication use, which is more closely linked to adherence issues. Targeted questions during regular care may reveal family routine practices amenable to intervention.
制定一种可靠的哮喘管理常规测量方法，并研究其与医疗保健利用、医疗依从性和生活质量的关联。
从两个地点招募了153名有哮喘患儿的家庭参与研究。父母完成了哮喘常规问卷、临床试验依从性访谈、哮喘功能严重程度问卷和照顾者生活质量问卷。儿童完成了儿童生活质量问卷。在一个研究地点，对儿童进行了为期12个月的用药电子监测。
主成分因子分析揭示了哮喘常规问卷的两个维度：用药常规和常规负担。用药常规与医疗依从性和医疗保健利用有关。常规负担与照顾者和儿童的生活质量有关。
哮喘常规问卷有望成为对与用药相关的家庭实践的可靠评估。日常护理的情感负担可以与用药区分开来，用药与依从性问题联系更为紧密。定期护理期间的针对性问题可能会揭示适合干预的家庭常规做法。
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