Turnball David
Queensland Advocacy Incorporated, Australia.
Monash Bioeth Rev. 2002 Oct;21(4):10-31. doi: 10.1007/BF03351283.
In addressing the regulation of human genetic futures, scientific standards concerning human kinds are endorsed by philosophical approaches that tend to exclude many people with genetic conditions from the deliberative process. In broadening the axiological, ontological and epistemological framework to include disability perspectives, the focus is shifted from questions of regulation to practical matters of participation, invoking ideals of community equality and enabled choice. In developing practical community engagements to deliberate upon genetic futures, a process that allows dialectical encounter between eugenic and non-eugenic approaches is envisioned so that strong versions of eugenics are avoided.
在探讨人类基因未来的监管问题时,有关人类类型的科学标准得到了一些哲学方法的认可,而这些方法往往将许多患有基因疾病的人排除在审议过程之外。通过拓宽价值论、本体论和认识论框架以纳入残疾视角,重点从监管问题转向了参与的实际问题,引入了社区平等和自主选择的理想。在开展实际的社区参与活动以审议基因未来时,设想了一个允许优生学方法与非优生学方法进行辩证交锋的过程,从而避免极端形式的优生学。