Hoppes Steve
Department of Rehabilitation Sciences, University of Oklahoma-Tulsa, 4502 E. 41st, Tulsa, Oklahoma 74135, USA.
Am J Occup Ther. 2005 May-Jun;59(3):262-72. doi: 10.5014/ajot.59.3.262.
Engagement in two interlinked areas of occupation, familial social participation and caring for my father at the end of his life, led to a journey of self-discovery. A qualitative research methodology, autoethnography, is used to develop a narrative that examines engagement in these two occupations before, during, and after my father's illness and death. I discuss meanings and purposes of familial social participation and caregiving, suggesting that transforming fear of death to awareness of death is a central purpose of caregiving. Implications for therapists and caregivers include considerations about the value of occupation, discussion of a continuum of caregiving, examination of boundaries when caring for a parent, thoughts about the roles of altruism, love, anger, and "bad faith" in caregiving, and analysis of sons as caregivers for fathers. Further research on meanings and purposes of caregiving is proposed.
参与家庭社会参与和在父亲生命末期照顾他这两个相互关联的职业领域，引发了一段自我发现的旅程。采用质性研究方法——自我民族志，来构建一个叙事，审视在父亲患病和去世之前、期间及之后我在这两个职业领域中的参与情况。我讨论了家庭社会参与和照顾的意义与目的，提出将对死亡的恐惧转化为对死亡的认知是照顾的核心目的。对治疗师和照顾者的启示包括对职业价值的思考、对照顾连续体的讨论、照顾父母时边界的审视、对利他主义、爱、愤怒和“不诚实”在照顾中所起作用的思考，以及对儿子作为父亲照顾者角色的分析。还提出了对照顾的意义和目的进行进一步研究。
