相似文献
1
Respiratory management of the infant with type 1 spinal muscular atrophy.
Arch Dis Child. 2005 Jul;90(7):709-11. doi: 10.1136/adc.2004.065961.
2
Outcome of goal-directed non-invasive ventilation and mechanical insufflation/exsufflation in spinal muscular atrophy type I.
Arch Dis Child. 2011 May;96(5):426-32. doi: 10.1136/adc.2009.177832. Epub 2010 Jun 23.
3
Consensus statement for standard of care in spinal muscular atrophy.
J Child Neurol. 2007 Aug;22(8):1027-49. doi: 10.1177/0883073807305788.
4
Special considerations in the respiratory management of spinal muscular atrophy.
Pediatrics. 2009 May;123 Suppl 4:S245-9. doi: 10.1542/peds.2008-2952K.
5
Spinal muscular atrophy type 1: management and outcomes.
Pediatr Pulmonol. 2002 Jul;34(1):16-22. doi: 10.1002/ppul.10110.
6
Distal infantile spinal muscular atrophy associated with paralysis of the diaphragm: a variant of infantile spinal muscular atrophy.
Am J Med Genet. 1989 Jul;33(3):328-35. doi: 10.1002/ajmg.1320330309.
7
[Home mechanical ventilation by nasal mask in a patient with Duchenne's disease].
Rev Neurol. 1996 May;24(129):562-3.
8
Non-invasive ventilation in children with upper airway obstruction.
Int J Pediatr Otorhinolaryngol. 2009 Apr;73(4):551-4. doi: 10.1016/j.ijporl.2008.12.003. Epub 2009 Jan 14.
9
[Effectiveness of home ventilation of young children and infants].
Med Klin (Munich). 1995 Apr;90(1 Suppl 1):57-9.
10
Management of respiratory failure in the preterm infant.
Minerva Pediatr. 2008 Apr;60(2):183-91.
引用本文的文献
1
Parental perspectives on family-centered care in pediatric neurology: An explanatory sequential mixed-methods study.
Dev Med Child Neurol. 2025 Oct;67(10):1340-1353. doi: 10.1111/dmcn.16275. Epub 2025 Apr 1.
2
[Is the refusal of invasive or noninvasive ventilation in a child with spinal muscular atrophy ethically justified?].
Wien Med Wochenschr. 2018 May;168(7-8):189-192. doi: 10.1007/s10354-018-0621-7. Epub 2018 Feb 15.
3
Research governance and change in research ethics practices at a major Australian university.
Monash Bioeth Rev. 2011 Sep;29(4):16.1-7. doi: 10.1007/BF03351330.
4
Demographic characteristics of SMA type 1 patients at a tertiary center in Turkey.
Eur J Pediatr. 2012 Mar;171(3):549-52. doi: 10.1007/s00431-011-1607-2. Epub 2011 Oct 21.
5
Spinal muscular atrophy with respiratory disease (SMARD): an ethical dilemma.
Intensive Care Med. 2006 Nov;32(11):1691-3. doi: 10.1007/s00134-006-0347-7. Epub 2006 Sep 9.
本文引用的文献
1
Spinal muscular atrophy--type I.
Arch Dis Child. 2003 Oct;88(10):848-50. doi: 10.1136/adc.88.10.848.
2
Cough augmentation with mechanical insufflation/exsufflation in patients with neuromuscular weakness.
Eur Respir J. 2003 Mar;21(3):502-8. doi: 10.1183/09031936.03.00048102.
3
Spinal muscular atrophy type 1: management and outcomes.
Pediatr Pulmonol. 2002 Jul;34(1):16-22. doi: 10.1002/ppul.10110.
4
Delays in tuberculosis isolation and suspicion among persons hospitalized with HIV-related pneumonia.
Chest. 2000 Jan;117(1):110-6. doi: 10.1378/chest.117.1.110.
5
Impact of nasal ventilation on survival in hypercapnic Duchenne muscular dystrophy.
Thorax. 1998 Nov;53(11):949-52. doi: 10.1136/thx.53.11.949.
Zotero 插件