Greenhalgh Joanne
Health Care Practice R&D Unit, Allerton Building, University of Salford, Frederick Road, Salford M66PU, UK.
Qual Life Res. 2005 Jun;14(5):1363-74. doi: 10.1007/s11136-004-5389-0.
The Multiple Sclerosis Symptom and Impact Diary (MSSID) was developed to provide a more comprehensive assessment of the impact of multiple sclerosis (MS) on HRQoL for use in clinical practice. This paper reports on an assessment of its feasibility and utility in two outpatient samples of people with MS (n = 13 and n = 63) using quantitative and qualitative methods. The response rate in study 2 was 82% and 83% of days were fully completed. Most respondents found the MSSID easy to understand and got into the habit of completing it. Missing items increased over time and those who experienced a relapse had more missing items than those who did not but there was no difference in the number of missed days. Some respondents found completing the MSSID enabled them to manage their lives more effectively and provided useful information to their neurologist. It is concluded that the MSSID is feasible for people with MS to complete and some may find the MSSID helpful as a tool to monitor their condition. Further research is needed to examine clinicians' perceptions of the feasibility and utility of the MSSID within clinical practice.
多发性硬化症状与影响日记(MSSID)旨在对多发性硬化(MS)对健康相关生活质量(HRQoL)的影响进行更全面的评估,以供临床实践使用。本文报告了使用定量和定性方法对其在两组MS门诊患者样本(n = 13和n = 63)中的可行性和实用性进行的评估。研究2中的回复率为82%,83%的日子都完整填写。大多数受访者认为MSSID易于理解,并养成了填写的习惯。随着时间的推移,缺失项目有所增加,经历复发的受访者比未经历复发的受访者有更多缺失项目,但漏填天数没有差异。一些受访者发现填写MSSID使他们能够更有效地管理自己的生活,并为神经科医生提供了有用信息。结论是,MS患者完成MSSID是可行的,一些人可能会发现MSSID作为监测病情的工具很有帮助。需要进一步研究以考察临床医生对MSSID在临床实践中的可行性和实用性的看法。