Sierakowska M, Krajewska-Kułak E, Lewko J, Przeorska-Najgebauer T, Jankowiak B, Rolka H, Szyszko-Perłowska A
Department of General Nursing, Faculty of Nursing and Healthcare, Medical University of Białystok, Poland.
Rocz Akad Med Bialymst. 2005;50 Suppl 1:107-10.
Rheumatoid arthritis (RA) is a chronic, progressive, immunologically dependent, systemic diseases of connective tissue, leading to disability, cripplehood or even premature death. Helping to improve the quality of life of RA patients involves teaching them how to cope with disease-related problems of everyday life, with stress and with suffering. The aim of the presented work is to determine the following: the patients' level of knowledge about rheumatoid arthritis; their educational needs; the impact of the level of knowledge on the patients' pro-health behaviours; the knowledge of nurses and their ability to recognize patients' problems; the nurse's tasks in preparing an RA patient for self-care. The subject group consisted of patients with RA diagnosed according to The American Rheumatism Association criteria and nurses from rheumatology clinics and wards. The research method used was a survey questionnaire, which had been constructed for the purpose of the research. The research results indicate a great need of patients, especially those with early rheumatoid arthritis, for education, support and help in adaptation. At the same time, the nurses, even though they do not fully fulfil their educational role, declare a willingness to participate in organized forms of health education.
类风湿性关节炎（RA）是一种慢性、进行性、免疫相关性的全身性结缔组织疾病，可导致残疾、跛行甚至过早死亡。帮助改善类风湿性关节炎患者的生活质量包括教导他们如何应对日常生活中与疾病相关的问题、压力和痛苦。本研究的目的是确定以下内容：患者对类风湿性关节炎的知识水平；他们的教育需求；知识水平对患者健康行为的影响；护士的知识以及他们识别患者问题的能力；护士在使类风湿性关节炎患者做好自我护理准备方面的任务。研究对象包括根据美国风湿病协会标准诊断的类风湿性关节炎患者以及来自风湿病诊所和病房的护士。所采用的研究方法是一份为该研究目的而编制的调查问卷。研究结果表明，患者，尤其是早期类风湿性关节炎患者，非常需要教育、支持和适应方面的帮助。同时，护士们虽然没有充分履行其教育职责，但表示愿意参与有组织形式的健康教育。
