夏科-马里-图思病患者的生活质量。
Quality of life in patients with Charcot-Marie-Tooth disease.
作者信息
Vinci P, Serrao M, Millul A, Deidda A, De Santis F, Capici S, Martini D, Pierelli F, Santilli V
机构信息
Department of Physical Medicine and Rehabilitation, University La Sapienza, Rome, Italy.
出版信息
Neurology. 2005 Sep 27;65(6):922-4. doi: 10.1212/01.wnl.0000176062.44360.49.
The authors evaluated quality of life in Charcot-Marie-Tooth disease by administering the Medical Outcome Study Short Form-36 (SF-36) questionnaire to 121 Italian patients. Patients scored lower on all of the SF-36 scales compared with Italian normative data. Scores were lower in nonworking vs working patients, women vs men, and older vs younger patients, but not between patients with demyelinating vs axonal forms or between patients who had undergone orthopedic foot surgery vs those who had not.
作者通过对121名意大利患者进行医学结局研究简明健康调查问卷（SF-36）来评估腓骨肌萎缩症患者的生活质量。与意大利正常数据相比，患者在SF-36所有量表上的得分较低。非工作患者与工作患者、女性与男性、老年患者与年轻患者之间的得分较低，但脱髓鞘型与轴索性患者之间以及接受过足部矫形手术的患者与未接受过手术的患者之间得分没有差异。
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