Chan H S S, Lau P H B, Fong K H, Poon D, Lam C C C
Central Kowloon Child Assessment Centre, Child Assessment Service, Department of Health, 147L Argyle Street, Hong Kong.
Hong Kong Med J. 2005 Oct;11(5):342-50.
To study children with cerebral palsy in Hong Kong, their neuroimpairment, activity limitation, and participation restriction in society. Parents' opinion on current medical and rehabilitation services was also sought.
Systematic survey using questionnaires.
Four associations in Hong Kong: Child Assessment Service, Hong Kong Association for Parents of Children with Physical Disabilities, Association of Parents of the Severely Mentally Handicapped, and Hong Kong Physically Handicapped and Able-Bodied Association.
Parents of children with cerebral palsy.
Neuroimpairment, activity limitation, and participation restriction.
Information from 181 children with cerebral palsy was analysed. Among them, 56% were boys. The mean age was 7 years 6 months (standard deviation, 3 years 11 months). The most common diagnostic type was spastic cerebral palsy. Co-morbidities in children with cerebral palsy were common. Limitation in daily activities including mobility and self-care tasks was considerable and this posed great stress to parents when taking care of their children. Children's participation in both social and leisure activities was regarded as a low priority. A high percentage (70%) of parents reported difficulty in travelling. The reasons involved problems in transportation, building access (entry and exit), and attitudes of the general public. These environmental factors restricted the social participation of the children and their families. Over 75% of parents were satisfied with the current medical and rehabilitation services.
Children with cerebral palsy have multiple and complex needs. The findings of this study may serve as a reference for parents, service providers, and policy makers to work in partnership to achieve a more comprehensive health-care service for children with cerebral palsy and to facilitate better integration into the community.
研究香港脑性瘫痪儿童的神经损伤、活动受限情况以及在社会中的参与受限情况。同时也收集家长对当前医疗及康复服务的意见。
采用问卷调查的系统调查。
香港的四个协会：儿童评估服务处、香港肢体伤残儿童家长协会、严重弱智人士家长协会以及香港伤残及健全人士协会。
脑性瘫痪儿童的家长。
神经损伤、活动受限和参与受限。
对181名脑性瘫痪儿童的信息进行了分析。其中，56%为男孩。平均年龄为7岁6个月（标准差为3岁11个月）。最常见的诊断类型是痉挛型脑性瘫痪。脑性瘫痪儿童共病情况常见。包括行动能力和自我护理任务在内的日常活动受限情况相当严重，这在家长照顾孩子时给他们带来了巨大压力。儿童在社交和休闲活动中的参与被视为低优先级。70%的家长报告出行困难。原因包括交通问题、建筑物出入口通道问题以及公众态度问题。这些环境因素限制了儿童及其家庭的社会参与。超过75%的家长对当前的医疗和康复服务感到满意。
脑性瘫痪儿童有多重且复杂的需求。本研究结果可为家长、服务提供者和政策制定者提供参考，以便他们携手合作，为脑性瘫痪儿童提供更全面的医疗保健服务，并促进其更好地融入社区。
