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巴西圣保罗州沿海地区多发性硬化症参考中心81名患者的描述与特征。

Description and characteristics of 81 patients attending the Reference Center for Multiple Sclerosis of the coastal region of the state of São Paulo-Brazil.

作者信息

Fragoso Yara Dadalti, Fiore Ana Patricia Perez

机构信息

Department of Health for the State of São Paulo, DIR XIX, CEREM Litoral Paulista.

出版信息

Arq Neuropsiquiatr. 2005 Sep;63(3B):741-4. doi: 10.1590/s0004-282x2005000500003. Epub 2005 Oct 18.

Abstract

OBJECTIVE

To register multiple sclerosis (MS) patients residing in the coastal region of the State of São Paulo (CEREM Litoral Paulista).

METHOD

Individual interviews with identified cases of MS.

RESULTS

81 individuals with diagnosis of MS agreed to come for registration (62 females [76.5%], 19 males [23.5%]). 65% of all patients were residents of the city of Santos. The mean age of these patients was 43 years (14 to 74 years), and the Expanded Disability Status Scale (EDSS) was < or = 5.5 in 76.5% of the cases. 82.7% of the assessed patients presented the relapsing/remitting form of MS. 81.5% of all patients were undergoing treatment with immunomodulators.

CONCLUSION

Due to their clinical profile, patients seem to come to CEREM Litoral Paulista for prescription of immunomodulators. There is a clear need to identify other cases in the region and to allow other forms of treatment to be put into practice.

摘要

目的

对居住在圣保罗州沿海地区(CEREM滨海圣保罗分部)的多发性硬化症(MS)患者进行登记。

方法

对确诊的MS病例进行个人访谈。

结果

81名诊断为MS的患者同意前来登记(62名女性[76.5%],19名男性[23.5%])。所有患者中有65%是桑托斯市居民。这些患者的平均年龄为43岁(14至74岁),76.5%的病例扩展残疾状态量表(EDSS)≤5.5。82.7%的评估患者表现为复发/缓解型MS。所有患者中有81.5%正在接受免疫调节剂治疗。

结论

鉴于其临床特征,患者似乎是为了开具免疫调节剂处方而来CEREM滨海圣保罗分部。显然有必要在该地区识别其他病例,并实施其他形式的治疗。

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