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Better breathing or better living? A qualitative analysis of the impact of asthma medication acquisition on standard of living and quality of life in low-income families of children with asthma.更好的呼吸还是更好的生活?对哮喘药物获取对低收入哮喘儿童家庭生活水平和生活质量影响的定性分析。
J Pediatr Health Care. 2005 Nov-Dec;19(6):354-62. doi: 10.1016/j.pedhc.2005.06.004.
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Out-of-pocket financial burden for low-income families with children: socioeconomic disparities and effects of insurance.有子女的低收入家庭的自付经济负担:社会经济差异及保险的影响。
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Effect of Sociodemographics, Health-Related Problems, and Family Structure on Chronic Absenteeism Among Children.社会人口统计学、与健康相关的问题和家庭结构对儿童慢性缺勤的影响。
J Sch Health. 2019 Apr;89(4):308-318. doi: 10.1111/josh.12736.
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本文引用的文献

1
Lay voices on allergic conditions in children: parents' narratives and the negotiation of a diagnosis.儿童过敏状况下的非专业声音:父母的叙述与诊断的协商
Soc Sci Med. 2004 Apr;58(7):1299-308. doi: 10.1016/S0277-9536(03)00328-9.
2
Inhaled corticosteroids in childhood asthma: Income differences in use.儿童哮喘吸入性糖皮质激素的使用情况:使用中的收入差异
Pediatr Pulmonol. 2003 Sep;36(3):241-7. doi: 10.1002/ppul.10335.
3
Parental perceptions of their child's asthma: management and medication use.父母对其子女哮喘的认知:管理与药物使用
J Pediatr Health Care. 2003 May-Jun;17(3):118-25. doi: 10.1067/mph.2003.31.
4
Omalizumab improves asthma-related quality of life in patients with severe allergic asthma.奥马珠单抗可改善重度过敏性哮喘患者与哮喘相关的生活质量。
J Allergy Clin Immunol. 2003 Feb;111(2):278-84. doi: 10.1067/mai.2003.54.
5
Living with asthma: the experiences of young people at home and at school.
Soc Sci Med. 2002 Nov;55(9):1619-33. doi: 10.1016/s0277-9536(01)00295-7.
6
Relationships between welfare status, health insurance status, and health and medical care among children with asthma.哮喘患儿的福利状况、健康保险状况与健康及医疗保健之间的关系。
Am J Public Health. 2002 Sep;92(9):1446-52. doi: 10.2105/ajph.92.9.1446.
7
Parents' accounts of wheeze and asthma related symptoms: a qualitative study.父母对喘息及哮喘相关症状的描述:一项定性研究
Arch Dis Child. 2002 Aug;87(2):131-4. doi: 10.1136/adc.87.2.131.
8
Access to medicines: cost as an influence on the views and behaviour of patients.药品可及性:成本对患者观点和行为的影响
Health Soc Care Community. 2002 May;10(3):187-95. doi: 10.1046/j.1365-2524.2002.00356.x.
9
Underuse of controller medications among Medicaid-insured children with asthma.医疗补助保险覆盖的哮喘儿童中控制药物使用不足的情况。
Arch Pediatr Adolesc Med. 2002 Jun;156(6):562-7. doi: 10.1001/archpedi.156.6.562.
10
Being the parent of a child with asthma.
Pediatr Nurs. 2001 Jul-Aug;27(4):365-73.

更好的呼吸还是更好的生活?对哮喘药物获取对低收入哮喘儿童家庭生活水平和生活质量影响的定性分析。

Better breathing or better living? A qualitative analysis of the impact of asthma medication acquisition on standard of living and quality of life in low-income families of children with asthma.

作者信息

Ungar Wendy J, Macdonald Tony, Cousins Martha

机构信息

The Hospital for Sick Children, Toronto, Canada.

出版信息

J Pediatr Health Care. 2005 Nov-Dec;19(6):354-62. doi: 10.1016/j.pedhc.2005.06.004.

DOI:10.1016/j.pedhc.2005.06.004
PMID:16286221
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4940177/
Abstract

INTRODUCTION

Purchasing children's asthma medications places a burden on low-income families. The objective of this study was to explore how purchasing children's asthma medications influenced household purchasing behavior and quality of life in low-income families with no drug insurance.

METHOD

Seventeen parents residing in the Greater Toronto Area with no drug plan and with household incomes below 45,000 US dollars (twice the U.S. poverty level) participated. Semi-structured interviews were conducted, emphasizing the topics of prescription drugs used and cost versus effectiveness; purchasing behavior and drug administration; effects of medication purchasing on the family; and payment assistance. Transcribed narratives were coded and analyzed thematically.

RESULTS

Annual expenditures for asthma drugs were 300 US dollars to 3000 US dollars. Because asthma management was a high priority, foregone expenditures included paying for other family members' health needs, essentials (clothing, food, better housing), and nonessentials (recreation, vacations) and long-term investments, such as their child's future education and their retirement. Respondents believed quality of life was negatively affected.

DISCUSSION

Not addressing the health concerns of family members, making sacrifices, and modifying investment decisions created sustained anxiety in families of children with asthma. Access to medication benefits would have a positive impact on quality of life. Health care providers can help to ensure that low-income families receive available assistance.

摘要

引言

购买儿童哮喘药物给低收入家庭带来了负担。本研究的目的是探讨购买儿童哮喘药物如何影响没有药物保险的低收入家庭的家庭购买行为和生活质量。

方法

17位居住在大多伦多地区、没有药物保险且家庭收入低于45000美元(美国贫困线的两倍)的家长参与了研究。研究人员进行了半结构化访谈,重点围绕使用的处方药、成本与疗效;购买行为与药物管理;药物购买对家庭的影响;以及支付援助等主题展开。对转录的叙述进行编码并进行主题分析。

结果

哮喘药物的年度支出为300美元至3000美元。由于哮喘管理是重中之重,因此放弃的支出包括为其他家庭成员的健康需求、生活必需品(衣物、食品、更好的住房)、非必需品(娱乐、度假)以及长期投资(如孩子未来的教育和自己的退休生活)支付费用。受访者认为生活质量受到了负面影响。

讨论

不解决家庭成员的健康问题、做出牺牲以及改变投资决策给患有哮喘儿童的家庭带来了持续的焦虑。获得药物福利将对生活质量产生积极影响。医疗保健提供者可以帮助确保低收入家庭获得可用的援助。