Ungar Wendy J, Macdonald Tony, Cousins Martha
The Hospital for Sick Children, Toronto, Canada.
J Pediatr Health Care. 2005 Nov-Dec;19(6):354-62. doi: 10.1016/j.pedhc.2005.06.004.
Purchasing children's asthma medications places a burden on low-income families. The objective of this study was to explore how purchasing children's asthma medications influenced household purchasing behavior and quality of life in low-income families with no drug insurance.
Seventeen parents residing in the Greater Toronto Area with no drug plan and with household incomes below 45,000 US dollars (twice the U.S. poverty level) participated. Semi-structured interviews were conducted, emphasizing the topics of prescription drugs used and cost versus effectiveness; purchasing behavior and drug administration; effects of medication purchasing on the family; and payment assistance. Transcribed narratives were coded and analyzed thematically.
Annual expenditures for asthma drugs were 300 US dollars to 3000 US dollars. Because asthma management was a high priority, foregone expenditures included paying for other family members' health needs, essentials (clothing, food, better housing), and nonessentials (recreation, vacations) and long-term investments, such as their child's future education and their retirement. Respondents believed quality of life was negatively affected.
Not addressing the health concerns of family members, making sacrifices, and modifying investment decisions created sustained anxiety in families of children with asthma. Access to medication benefits would have a positive impact on quality of life. Health care providers can help to ensure that low-income families receive available assistance.
购买儿童哮喘药物给低收入家庭带来了负担。本研究的目的是探讨购买儿童哮喘药物如何影响没有药物保险的低收入家庭的家庭购买行为和生活质量。
17位居住在大多伦多地区、没有药物保险且家庭收入低于45000美元(美国贫困线的两倍)的家长参与了研究。研究人员进行了半结构化访谈,重点围绕使用的处方药、成本与疗效;购买行为与药物管理;药物购买对家庭的影响;以及支付援助等主题展开。对转录的叙述进行编码并进行主题分析。
哮喘药物的年度支出为300美元至3000美元。由于哮喘管理是重中之重,因此放弃的支出包括为其他家庭成员的健康需求、生活必需品(衣物、食品、更好的住房)、非必需品(娱乐、度假)以及长期投资(如孩子未来的教育和自己的退休生活)支付费用。受访者认为生活质量受到了负面影响。
不解决家庭成员的健康问题、做出牺牲以及改变投资决策给患有哮喘儿童的家庭带来了持续的焦虑。获得药物福利将对生活质量产生积极影响。医疗保健提供者可以帮助确保低收入家庭获得可用的援助。