Adenipekun A, Onibokun A, Elumelu T N, Soyannwo O A
Department of Radiotherapy, College of Medicine, University of Ibadan.
Niger J Clin Pract. 2005 Jun;8(1):19-22.
A palliative care and Hospice service is a neglected aspect of medical discipline especially in a developing country like Nigeria. With the global increase in incidence of cancer and HIV/AIDS and 70% of them presenting late, coupled with limited resources, for effective symptom control, palliative care therefore remains the only option left to improve the quality of life of the patients.
To assess the knowledge and attitudes of patients and their relations to palliative care and hospice services {PC&H} and to fashion out appropriate services for the patients.
A total of 130 participants were studied using a questionnaire which comprised of three parts: Socio-demographic variables, Information about Knowledge and Attitudes towards PC&H.
Sixty nine were patients while 61 were family members. Ninety four [72.3%] had no knowledge of PC&H regardless of level of education and social status. 109 [84%] agreed that symptoms of the terminally ill patients should be treated to improve their quality of life and 75% of the participants agreed that this will be better done in a Hospice. 106 [83%] participants desire to have hospice established in every community, this again was regardless of tribe
There is a gross lack of knowledge about PC&H in our community as evidenced among the participants studied. However, there is a positive attitude towards PC&H suggesting a general acceptance, since there is presently no well established Hospice in Nigeria; we recommend that government and Non governmental organizations should assist in this area. A hospital based Hospice might be a starting point.
姑息治疗和临终关怀服务是医学领域中一个被忽视的方面,尤其是在像尼日利亚这样的发展中国家。随着全球癌症和艾滋病毒/艾滋病发病率的上升,其中70%的患者就诊时已处于晚期,再加上资源有限,为了有效控制症状,姑息治疗因此仍然是改善患者生活质量的唯一选择。
评估患者及其亲属对姑息治疗和临终关怀服务(PC&H)的知识和态度,并为患者制定合适的服务。
使用一份问卷对总共130名参与者进行了研究,问卷包括三个部分:社会人口统计学变量、关于PC&H的知识和态度的信息。
69名是患者,61名是家庭成员。无论教育程度和社会地位如何,94名(72.3%)对PC&H一无所知。109名(84%)同意应治疗晚期患者的症状以改善他们的生活质量,75%的参与者同意在临终关怀机构进行会更好。106名(83%)参与者希望在每个社区都设立临终关怀机构,这同样与部落无关。
在所研究的参与者中可以看出,我们社区对PC&H的了解严重不足。然而,对PC&H有积极的态度,表明普遍接受,由于目前尼日利亚没有完善的临终关怀机构;我们建议政府和非政府组织应在这方面提供帮助。以医院为基础的临终关怀机构可能是一个起点。