Litschel Adela, Borgetto Bernhard
Kassenärztliche Bundesvereinigung, Kooperationsstelle für Selbsthifeorganisationen, Berlin.
Z Arztl Fortbild Qualitatssich. 2005;99(10):617-21.
Self-help groups and organisations are important contributors to the provision of rheumatological care. No systematic studies exist thus far on the cooperation between professional care providers and the German Rheumatism League, the most significant patient organisation for rheumatoid patients.
To gain information about the extent of the co-operation between rheumatologists and the German Rheumatism League and to estimate the benefits of the co-operation, a survey was conducted among German rheumatologists in the out-patient sector (n = 787).
The response rate was 40.7%. As many as 98.7% of the rheumatologists were informed about self-help initiatives, with 78.1% receiving this information from their own patients. Regular or frequent co-operation with self-help initiatives was reported by 46%. Among the physicians with experience in co-operation, 84.1% wished more contact with self-help initiatives, compared with only 61.9% of non-experienced physicians. The benefit of the activities of the Rheumatism League was highly appreciated: the long-term training of functional capacity was evaluated as helpful by 73.4%; the training for coping with pain by 62.2%; the occupational therapy groups by 60.6%; the patient-education groups by 61.6%; and the self-help groups by 56.3%. The benefit of co-operation was appreciated more by rheumatologists experienced in co-operation than by rheumatologist without specific experience: on a rating scale from 1 (little benefit) to 6 (high benefit) the former group scored an average of 3.7, the latter an average of 2.7.
In spite of the relatively low response rate (40.7%), the results cover a relevant part of rheumatologists in the out-patient sector. The more experience physicians have with co-operation, the higher they estimate the benefits of co-operation with the Rheumatism League. This underlines the necessity of technical information about self-help initiatives and the promotion of contacts and co-operation in the rheumatological out-patient sector.
自助团体和组织是提供风湿病护理的重要贡献者。迄今为止，尚未有关于专业护理提供者与德国风湿病联盟（类风湿患者最重要的患者组织）之间合作的系统性研究。
为了了解风湿病学家与德国风湿病联盟之间的合作程度，并评估合作的益处，对德国门诊部门的风湿病学家进行了一项调查（n = 787）。
回复率为40.7%。多达98.7%的风湿病学家了解自助倡议，其中78.1%是从他们自己的患者那里获得这些信息的。46%的人报告与自助倡议有定期或频繁的合作。在有合作经验的医生中，84.1%希望与自助倡议有更多接触，而没有经验的医生中这一比例仅为61.9%。风湿病联盟活动的益处得到了高度评价：73.4%的人认为功能能力的长期培训有帮助；62.2%的人认为疼痛应对培训有帮助；60.6%的人认为职业治疗小组有帮助；61.6%的人认为患者教育小组有帮助；56.3%的人认为自助小组有帮助。有合作经验的风湿病学家比没有特定经验的风湿病学家更赞赏合作的益处：在从1（益处不大）到6（益处很大）的评分量表上，前一组平均得分为3.7，后一组平均得分为2.7。
尽管回复率相对较低（40.7%），但结果涵盖了门诊部门相当一部分的风湿病学家。医生与合作的经验越多，他们对与风湿病联盟合作益处的估计就越高。这凸显了提供自助倡议技术信息以及促进风湿病门诊部门的联系与合作的必要性。
