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机遇、选择与控制:关于产前社会性别的舆论辩论

Chance, choice and control: lay debate on prenatal social sex selection.

作者信息

Scully Jackie Leach, Banks Sarah, Shakespeare Tom W

机构信息

Unit for Ethics in the Biosciences, University of Basel, 4056 Basel, Switzerland.

出版信息

Soc Sci Med. 2006 Jul;63(1):21-31. doi: 10.1016/j.socscimed.2005.12.013. Epub 2006 Feb 3.

Abstract

Assisted reproductive technologies are typically positioned as increasing the range of choices open to the healthcare consumer, thereby enhancing 'reproductive freedom'. In this paper, we question the equivalence of reproductive choice and personal freedom in ethical theory, using results from a project investigating how lay people make ethical evaluations about the new genetic and reproductive technologies. We took the topic of social sex selection by preimplantation genetic diagnosis (PGD), and used group discussions and interviews in the north-east of England to trace how lay people develop and express their ethical evaluations, and to identify the implicit or explicit normative framework that gave rise to their opinions on prenatal sex selection. There was a striking level of ambivalence towards choice in general and reproductive choice in particular. Participants offered few positive statements and numerous reasons why reproductive choice might be problematic. Our participants' argumentation shares with mainstream bioethical analysis the weighing of the possible harms of prenatal sex selection for social reasons against the harm of restricting reproductive freedom. However, unlike most secular-liberal bioethicists, many of our participants concluded that prenatal sex selection is undesirable because it is an expression of parental preference instead of a response to the future child's need. Our interpretation of their reasoning is that they work from an ideal of "good parents", one of the features of which is the relinquishing of control over their children, except to protect them from harm. This voluntary self-limitation does not indicate reduced autonomy, because parental autonomy can only operate within the limits set by this relational framework. We suggest that a model of relational autonomy captures our lay participants' framing of the problem better than a more traditional understanding of autonomy. Our study also shows that in appropriately structured discussion of bioethical issues, lay people can articulate reasons for their opinions that are grounded in sophisticated and morally relevant concepts.

摘要

辅助生殖技术通常被认为增加了医疗消费者可选择的范围,从而增强了“生殖自由”。在本文中,我们运用一个项目的研究结果来质疑生殖选择与伦理理论中个人自由的等同性,该项目旨在调查普通民众如何对新的基因和生殖技术进行伦理评价。我们以胚胎植入前遗传学诊断(PGD)进行社会性别选择这一话题为例,通过在英格兰东北部进行小组讨论和访谈,来探寻普通民众如何形成并表达他们的伦理评价,以及确定导致他们对产前性别选择持有观点的隐含或明确的规范框架。总体而言,尤其是对于生殖选择,人们表现出了显著的矛盾态度。参与者很少给出积极的表述,却提出了诸多生殖选择可能存在问题的理由。我们的参与者在论证过程中,与主流生物伦理学分析一样,权衡了出于社会原因进行产前性别选择可能带来的危害与限制生殖自由所造成的危害。然而,与大多数世俗自由主义生物伦理学家不同的是,我们的许多参与者得出结论,认为产前性别选择不可取,因为它是父母偏好的一种体现,而非对未来孩子需求的回应。我们对他们推理过程的解读是,他们基于“好父母”的理想模式进行思考,其中一个特点就是除了保护孩子免受伤害之外,放弃对孩子的控制。这种自愿的自我限制并不意味着自主性的降低,因为父母的自主性只能在这个关系框架所设定的范围内发挥作用。我们认为,相较于对自主性的更传统理解,关系自主性模型能更好地体现我们普通参与者对该问题的界定。我们的研究还表明,在对生物伦理问题进行适当组织的讨论中,普通民众能够阐明基于复杂且与道德相关概念的观点理由。

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