Wollin Judy Ann, Yates Patsy M, Kristjanson Linda J
Griffith University, School of Nursing and Midwifery, Logan Campus, University Drive, Meadowbrook 4131, Queensland.
Int J Palliat Nurs. 2006 Jan;12(1):20-6. doi: 10.12968/ijpn.2006.12.1.20392.
To identify the supportive needs of individuals with multiple sclerosis (MS) and their families. DESIGN, SAMPLE AND METHOD: In-depth interviews were carried out with people living with MS in the community, their family members and health professionals. The data were transcribed verbatim and recurring themes identified.
The analysis of interviews revealed four themes: disbelief and devastation; losses and forced life choices; tracking down services and information; and sadness and relief.
Given the duration, range of symptoms and distress often associated with MS, the findings of this research raise the important question of the role of palliative services in supporting the person with MS and his/her family.
确定多发性硬化症（MS）患者及其家人的支持需求。
设计、样本与方法：对社区中的MS患者、其家庭成员及健康专业人员进行了深入访谈。数据逐字转录，并确定了反复出现的主题。
访谈分析揭示了四个主题：怀疑与震惊；丧失与被迫的生活选择；寻找服务与信息；悲伤与解脱。
鉴于MS通常具有的病程、症状范围及痛苦，本研究结果提出了一个重要问题，即姑息治疗服务在支持MS患者及其家人方面的作用。
