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自我关怀与患者参与基因讨论:对卫生局局长“我的家庭健康画像”项目的福柯式解读

Care of the self and patient participation in genetic discourse: a Foucauldian reading of the surgeon general's "my family health portrait" program.

作者信息

Bates Benjamin R

机构信息

School of Communication Studies, Ohio University, Lasher Hall, Athens, 45701, USA.

出版信息

J Genet Couns. 2005 Dec;14(6):423-34. doi: 10.1007/s10897-005-4845-5.

Abstract

Critics of genetic discourse are concerned that deterministic and discriminatory views of genetics are increasingly becoming adopted. These views argue that current genetic discourse becomes a source of power whereby powerful institutions harm people with so-called "bad" genes. This essay argues that current analyses of the power of genetics discourse are grounded in an improper reading that disempowers patients. Deploying Michel Foucault's concept "care of the self," this essay claims that genetics discourse is better understood as a way that patients take on power through rhetoric rather than a force that has power over patients. Through a close reading of the "My Family Health Portrait" program, this paper argues that patients experience a process of "subjection" wherein they become agents of and objects of genetics discourse both. This alternative mode of analyzing the power of genetics discourse has implications for our collective understanding of the operations of the care of the self and the uses of genetic information that we propose.

摘要

基因话语的批评者担心,遗传学的决定论和歧视性观点越来越被人们所接受。这些观点认为,当前的基因话语成为了一种权力来源,强大的机构借此伤害那些拥有所谓“不良”基因的人。本文认为,当前对基因话语权力的分析基于一种不当的解读,这种解读削弱了患者的权力。运用米歇尔·福柯的“自我关怀”概念,本文认为,基因话语更应被理解为患者通过修辞获取权力的一种方式,而非对患者施加权力的一种力量。通过仔细研读“我的家庭健康画像”项目,本文认为患者经历了一个“臣服”的过程,在此过程中,他们既是基因话语的主体,也是其客体。这种分析基因话语权力的替代模式,对我们对自我关怀运作以及我们所提出的基因信息用途的集体理解具有启示意义。

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