Grant Elizabeth, Murray Scott A, Kendall Marilyn, Boyd Kirsty, Tilley Stephen, Ryan Desmond
Division of Community Health Sciences, University of Edinburgh, Edinburgh, UK.
Palliat Support Care. 2004 Dec;2(4):371-8. doi: 10.1017/s1478951504040490.
Health care professionals and policy makers acknowledge that spiritual needs are important for many patients with life-limiting illnesses. We asked such patients to describe their spiritual needs and how these needs may impinge on their physical, psychological, and social well-being. Patients were also encouraged to explain in what ways their spiritual needs, if they had any, could be addressed.
We conducted two qualitative interviews, 3 months apart, with 20 patients in their last year of life: 13 patients with advanced cancer and 7 with advanced nonmalignant illness. We also interviewed each patient's general practitioner. Sixty-six interviews were tape-recorded, transcribed, and analyzed.
Patients' spiritual needs centered around their loss of roles and self-identity and their fear of dying. Many sought to make sense of life in relation to a nonvisible or sacred world. They associated anxiety, sleeplessness, and despair with such issues, which at times resulted in them seeking support from health professionals. Patients were best able to engage their personal resources to meet these needs when affirmed and valued by health professionals.
Enabling patients to deal with their spiritual needs through affirmative relationships with health professionals may improve quality of life and reduce use of health resources. Further research to explore the relationship between spiritual distress and health service utilization is indicated.
医疗保健专业人员和政策制定者承认,精神需求对许多患有危及生命疾病的患者来说很重要。我们要求这类患者描述他们的精神需求,以及这些需求可能如何影响他们的身体、心理和社会福祉。我们还鼓励患者解释,如果他们有精神需求,这些需求可以通过哪些方式得到满足。
我们对20名处于生命最后一年的患者进行了两次定性访谈,两次访谈间隔3个月:13名晚期癌症患者和7名晚期非恶性疾病患者。我们还采访了每位患者的全科医生。66次访谈进行了录音、转录和分析。
患者的精神需求集中在他们角色和自我认同的丧失以及对死亡的恐惧上。许多人试图从与一个无形或神圣世界的关系中理解生命的意义。他们将焦虑、失眠和绝望与这些问题联系起来,这有时导致他们向医疗专业人员寻求支持。当得到医疗专业人员的肯定和重视时,患者最能够调动个人资源来满足这些需求。
通过与医疗专业人员建立肯定性的关系,使患者能够应对他们的精神需求,这可能会提高生活质量并减少医疗资源的使用。有必要进行进一步的研究,以探索精神困扰与医疗服务利用之间的关系。