Lempp H, Scott D L, Kingsley G H
Department of Rheumatology, King's College London School of Medicine at Guy's, King's College and St Thomas' Hospitals, Weston Education Centre, London, UK.
Rheumatology (Oxford). 2006 Dec;45(12):1522-8. doi: 10.1093/rheumatology/kel132. Epub 2006 Apr 21.
To study the experiences and views of patients with rheumatoid arthritis (RA) on the quality of health care received in primary and secondary care.
Semi-structured interviews with 26 individual patients with RA; these were stratified by sex, ethnicity and disease duration, based on the treated prevalence cohort of patients attending two outpatient clinics in South East England.
Patients highlighted four main factors which influenced their attitude and approach towards hospital staff and the treatment offered: (i) their past experiences with the National Health Service (NHS), (ii) their own health beliefs, (iii) professional attitudes (e.g. listening to patients, receiving feedback on disease processes) and (iv) organizational aspects (e.g. good communication between health professionals) which would make their visits to the outpatient clinic easier.
Most patients no longer see themselves as passive recipients of care. They appreciate acknowledgement from health care professionals of their contribution towards management of their own chronic illness, and welcome a more equal dialogue with health care staff. This is consistent with the emphasis of the Department of Health document on 'Supporting People with Long-term Conditions' such as RA.
研究类风湿关节炎（RA）患者在初级和二级医疗保健中接受医疗服务质量的体验和看法。
对26名RA患者进行半结构式访谈；根据英格兰东南部两家门诊诊所接受治疗的患者流行队列，按性别、种族和病程进行分层。
患者强调了影响他们对医院工作人员态度和对所提供治疗态度的四个主要因素：（i）他们过去与国民医疗服务体系（NHS）的经历，（ii）他们自己的健康观念，（iii）专业态度（如倾听患者、接受疾病进程反馈）以及（iv）组织方面（如医疗专业人员之间的良好沟通），这些因素会使他们到门诊就诊更加便利。
大多数患者不再将自己视为被动的医疗服务接受者。他们感激医疗保健专业人员认可他们对自身慢性病管理的贡献，并欢迎与医护人员进行更平等的对话。这与卫生部关于“支持患有类风湿关节炎等长期疾病的患者”文件的重点一致。
