School of Health Sciences, Jönköping University, Jönköping, Sweden.
Int J Qual Stud Health Well-being. 2011;6(4). doi: 10.3402/qhw.v6i4.8473. Epub 2011 Oct 31.
Rheumatic diseases are often chronic and involve a lifetime of suffering. The focus of rheumatology care is to support patients to manage their lives and master their disease. Healthcare providers and patients have different views on the consequences of living with rheumatic diseases and patients are reporting unmet healthcare needs. There is a need to integrate providers' perspective to develop the quality of rheumatology care. The aim was to explore healthcare providers' experiences of their interaction with patients in their management of RA. Interviews with 18 providers from different clinical settings were analysed in accordance with the grounded theory method. A core category; Delivering knowledge and advice was found to be the most important task and involved providing the patient with information about the disease and appropriate forms of treatment. Healthcare providers' attitudes and patients' responses influenced the outcome of the delivery of knowledge and advice and three dimensions emerged; completed delivery, adjusted delivery and failed delivery. There were differences in the providers' experiences in their interaction with patients as well as in reflections on their role as the delivering part. There could be difficulties in the interaction when patients' expectations and preferences were not taken into account when giving advice. These findings highlight the importance of developing rheumatology care, as no provider or patient benefits if the delivery of knowledge and advice becomes a failed delivery. The healthcare organization must acknowledge the difficulties involved in the interaction with patients in their management of RA and find methods to develop a more person-centred approach to care.
风湿性疾病通常是慢性的,并伴随一生的痛苦。风湿病护理的重点是支持患者管理他们的生活并掌握他们的疾病。医疗保健提供者和患者对患有风湿性疾病的后果有不同的看法,患者报告存在未满足的医疗需求。有必要整合提供者的观点,以提高风湿病护理的质量。本研究旨在探讨医疗保健提供者在管理类风湿关节炎患者过程中与患者互动的经验。对来自不同临床环境的 18 名提供者进行了访谈,并根据扎根理论方法进行了分析。发现一个核心类别:提供知识和建议,这是最重要的任务,包括向患者提供有关疾病和适当治疗形式的信息。医疗保健提供者的态度和患者的反应影响了知识和建议的传递结果,出现了三个维度:完成传递、调整传递和失败传递。提供者在与患者互动方面的经验以及对他们作为传递者角色的反思存在差异。当提供建议时没有考虑患者的期望和偏好时,可能会在互动中出现困难。这些发现强调了发展风湿病护理的重要性,如果知识和建议的传递变得失败,没有提供者或患者会从中受益。医疗保健组织必须认识到在管理类风湿关节炎患者时与患者互动所涉及的困难,并找到方法来发展更以患者为中心的护理方法。