Chadwick Ruth
ESRC Centre for Economic and Social Aspects of Genomics, Furness College, Lancaster University, UK.
Commun Med. 2004;1(2):193-9. doi: 10.1515/come.2004.1.2.193.
Issues about communication in genomics have moved out of the clinic and into the public arena. Scientists other than clinicians are confronted by calls for public engagement. Genomics gives rise to these demands partly because it inevitably raises the three basic questions of philosophy as outlined by Kant: What can I know? What ought I to do? What may I hope? Genomics on its own cannot answer these questions. In relation to what can be known, its answer is at best partial. Nor can the ought question be settled by science. In fact, science is criticized for reducing options while claiming to be neutral in the pursuit of knowledge. The answer to the ought question is crucially related to the hope question in so far as this deals with issues about the point of human life generally. The role of public engagement in relation to all these questions may have different objectives. It is argued that there is more of a place for it in relation to the hope question than is commonly recognized, and in particular with regard to the role of science, which could benefit from developing a service ideal in the sense found in discussions of professional ethics.
基因组学中的沟通问题已从临床领域转移到了公共领域。临床医生以外的科学家面临着公众参与的呼声。基因组学引发这些需求,部分原因在于它不可避免地引出了康德所概述的哲学三个基本问题:我能知道什么?我应该做什么?我可以希望什么?基因组学本身无法回答这些问题。关于能知道什么,其答案充其量只是部分的。科学也无法解决应该做什么的问题。事实上,科学因在追求知识时声称中立却减少了选择而受到批评。应该做什么的问题的答案与希望的问题密切相关,因为后者总体上涉及人类生活的意义问题。公众参与在所有这些问题上的作用可能有不同目标。有人认为,公众参与在希望的问题上比通常认为的更有空间,特别是在科学的作用方面,科学可以从发展一种在职业道德讨论中所发现的服务理想中受益。