McManus Vicki, Guillem Pascale, Surman Geraldine, Cans Christine
Southern Ireland CP Registry, Enable Ireland Cork, IE.
Zhongguo Dang Dai Er Ke Za Zhi. 2006 Aug;8(4):261-5.
The main aim of the Surveillance of Cerebral Palsy in Europe (SCPE) network was to develop a central database of cerebral palsy (CP) cases across Europe. Monitoring trends in prevalence rates of CP should contribute to collaborative studies on risk factors or quality of life for children living with CP. A multi-centre collaboration of CP registries used a clear definition of CP to accurately and consistently identify cases of CP. The rate of CP within the collaboration varied from 1.5 to 3 per 1000 live births. For the birth cohort 1980 to 1996 (n=9128), 53.9% of the CP children had a bilateral spastic CP, 31.0% had unilateral spastic CP, 6.6% were dyskinetic and 4.1% ataxic. Among CP children, 20.4% had a birth weight less than 1500 g and 25.5% were born before 32 weeks gestational age. Intellectual impairment corresponding to an IQ<50 was found in 29.5% of CP children. The proportion of CP children unable to walk, even with aids, was 30.3%. Twelve and a half percent of CP children were known to have a severe visual impairment. It was concluded that registers are the best means to implement epidemiological research into CP.
欧洲脑瘫监测（SCPE）网络的主要目标是建立一个涵盖全欧洲脑瘫（CP）病例的中央数据库。监测脑瘫患病率趋势应有助于开展关于脑瘫患儿危险因素或生活质量的合作研究。一个由脑瘫登记处组成的多中心合作团队采用了明确的脑瘫定义，以准确且一致地识别脑瘫病例。该合作项目中的脑瘫发病率在每1000例活产中为1.5至3例。对于1980年至1996年的出生队列（n = 9128），53.9%的脑瘫患儿为双侧痉挛性脑瘫，31.0%为单侧痉挛性脑瘫，6.6%为运动障碍型，4.1%为共济失调型。在脑瘫患儿中，20.4%的出生体重低于1500克，25.5%在孕32周前出生。在29.5%的脑瘫患儿中发现存在智商低于50的智力障碍。即使借助辅助器具仍无法行走的脑瘫患儿比例为30.3%。已知12.5%的脑瘫患儿有严重视力障碍。研究得出结论，登记处是对脑瘫开展流行病学研究的最佳方式。
