Buelow Janice M, Shore Cheryl P
Indiana University School of Nursing, 1111 Middle Drive NU 415, Indianapolis, IN 46202, USA.
Epilepsy Behav. 2006 Nov;9(3):440-7. doi: 10.1016/j.yebeh.2006.07.004. Epub 2006 Aug 24.
Despite the importance of early diagnosis in childhood epilepsy, few published studies address the process of the child's entry into the health care system. The purpose of this article is to describe parental accounts of the diagnostic process and corresponding treatment for their children. We interviewed 21 parents of children who had both epilepsy and significant learning problems using semistructured open-ended interviews. During the interview, we asked parents to describe their child's medical history. Qualitative data analysis techniques were used to analyze the interviews. They revealed three system failures where the recognition and treatment of epilepsy fall short of an ideal diagnostic trajectory: (1) parents not seeking treatment for their child's epilepsy, (2) health care providers not recognizing seizures, and (3) health care providers not making accurate diagnoses or initiating inappropriate treatment. This study provides a foundation on which to build future studies.
尽管早期诊断在儿童癫痫中至关重要，但很少有已发表的研究涉及儿童进入医疗保健系统的过程。本文的目的是描述父母对其子女诊断过程及相应治疗的描述。我们使用半结构化开放式访谈，采访了21位子女患有癫痫且有严重学习问题的父母。在访谈过程中，我们要求父母描述其孩子的病史。采用定性数据分析技术对访谈进行分析。结果揭示了癫痫识别与治疗未达理想诊断轨迹的三个系统故障：（1）父母未为其孩子的癫痫寻求治疗；（2）医疗保健提供者未识别出癫痫发作；（3）医疗保健提供者未做出准确诊断或启动不恰当治疗。本研究为开展未来研究奠定了基础。
