Hammel Joy, Jones Robin, Gossett Andrea, Morgan Elizabeth
Doctoral Program in Disability Studies, Department of Occupational Therapy & Disability and Human Development, University of Illinois at Chicago, USA.
Top Stroke Rehabil. 2006 Summer;13(3):43-58. doi: 10.1310/5X2G-V1Y1-TBK7-Q27E.
This participatory action research study focused on identifying community participation goals, barriers, and supports/strategies in partnership with people who have experienced a stroke. Goals demonstrate that participation is more than activity performance in context; instead, it relates to "being a part of" the community and having access to participation opportunities and supports. Results of community site audits from the first 20 participants document environmental (physical, cognitive, social) and system level barriers, as well as effective strategies for promoting participation via environmental modification and systems level changes. A consumer-directed, Web-based tool for documenting participation barriers and sharing strategies is discussed.
这项参与式行动研究聚焦于与中风患者共同确定社区参与的目标、障碍以及支持/策略。目标表明,参与不仅仅是在特定情境下的活动表现;相反,它关乎“成为社区的一部分”以及有机会获得参与机会和支持。对前20名参与者进行的社区实地审核结果记录了环境(物理、认知、社会)和系统层面的障碍,以及通过环境改造和系统层面变革促进参与的有效策略。文中还讨论了一种由消费者主导的、基于网络的记录参与障碍和分享策略的工具。