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遗传学与先天性畸形:厄瓜多尔郊区社区及萨满教巫师的解读、态度与做法

Genetics and congenital malformations: interpretations, attitudes and practices in suburban communities and the shamans of ecuador.

作者信息

Paz-Y-Miño César, Sánchez María Eugenia, Sarmiento Isabel, Leone Paola E

机构信息

Genetics Unit, Medical Faculty and Molecular Genetics and Human Cytogenetic Laboratory, Pontifical Catholic University of Ecuador, Quito, Ecuador.

出版信息

Community Genet. 2006;9(4):268-73. doi: 10.1159/000094476.

Abstract

OBJECTIVES

The purpose of the present article was to evaluate how shamans and the suburban communities of Quito interpret the terminology used in genetics.

METHODS

One hundred people living in 5 suburban districts of Quito were surveyed as well as 19 shamans of the Salasaca community.

RESULTS

The results show that members of both groups are little informed about genetics. As knowledge about genetics is correlated to educational level, which is very poor in both groups, knowledge and understanding of genetics are either very basic or nonexistent. As for the medical practices in treating genetic alterations, the surveys show that while in very severe cases scientific medicine is sought, in most cases explanations and a cure are given by shamanic medicine.

CONCLUSION

There is limited knowledge of genetics and its terminology in the study population. Shamanic and marginal health practices seem to remain prevalent in these communities due to their low costs, the personal attention the individuals receive, and the holistic point of view employed. It is important that the community councils, the medical doctors and the shamans work together to set up community programs on medical education, particularly on genetics.

摘要

目的

本文旨在评估萨满教巫师以及基多郊区社区如何解读遗传学中使用的术语。

方法

对居住在基多5个郊区的100人以及萨拉萨卡社区的19名萨满教巫师进行了调查。

结果

结果显示,两组人员对遗传学的了解都很少。由于对遗传学的了解与教育水平相关,而两组人员的教育水平都很低,所以对遗传学的知识和理解要么非常基础,要么不存在。至于治疗基因改变的医疗实践,调查表明,在非常严重的情况下会寻求科学医学,但在大多数情况下,萨满教医学提供解释和治疗方法。

结论

研究人群对遗传学及其术语的了解有限。萨满教和边缘健康实践在这些社区似乎仍然很普遍,这是因为它们成本低、个人能得到关注以及采用整体观点。社区委员会、医生和萨满教巫师共同合作开展社区医学教育项目,特别是关于遗传学的项目,这一点很重要。

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