Grytten Nina, Måseide Per
Institute of Clinical Medicine, Department of Neurology, University of Bergen, N-5021 Bergen, Norway.
Chronic Illn. 2006 Sep;2(3):195-208. doi: 10.1177/17423953060020030101.
We explored the stigma that people with multiple sclerosis (MS) experienced in social relationships. Informed by the symbolic integrationist paradigm, this sociological study focuses on the creation of personal identity through interaction with others. The symbolic interactionist account of stigma examines the meaning and reality being negotiated in communication with others.
Fourteen people with MS and their relatives were interviewed. The unstructured interviews were tape-recorded, transcribed and coded in accordance with the procedure of grounded theory.
Informants reported being ignored or, in contrast, having people overemphasize MS in interpersonal encounters. Although people tried to act tactfully, these acts were experienced as crucial stigmatizing. Informants were coping to counteract stigmatizing experiences in social relationships.
People with MS perceive that their bodily performance and impression management is being judged in interpersonal encounters. Being ignored or perceiving that MS is overemphasized indicates the dilemma of managing stigma in social networks. Consequently, during interaction and in social relationships, people with MS experience a sense of 'feeling more ill'. This paper describes strategies of networking to affirm self and identity.
我们探究了多发性硬化症（MS）患者在社会关系中所经历的污名化现象。受象征整合主义范式的启发，这项社会学研究聚焦于通过与他人互动来塑造个人身份。污名化的象征互动主义观点审视了在与他人交流中所协商的意义和现实。
对14名多发性硬化症患者及其亲属进行了访谈。无结构式访谈进行了录音、转录，并按照扎根理论的程序进行编码。
受访者表示在人际接触中被忽视，或者相反，人们过度强调多发性硬化症。尽管人们试图表现得得体，但这些行为被视为严重的污名化行为。受访者正在努力应对以抵消社会关系中的污名化经历。
多发性硬化症患者认为在人际接触中他们的身体表现和印象管理受到评判。被忽视或感觉多发性硬化症被过度强调表明了在社交网络中管理污名的困境。因此，在互动和社会关系中，多发性硬化症患者会有一种“感觉病情更严重”的感觉。本文描述了确认自我和身份的社交策略。
