Al-Obaid Jaafar A, Al-Megbel Yousef
Research Department, King Khaled Eye Specialist Hospital, PO Box 52430, Riyadh 11563, Kingdom of Saudi Arabia.
Saudi Med J. 2006 Oct;27(10):1561-6.
To investigate the compliance and non-compliance of retinoblastoma patients/siblings with their appointments at the Retinoblastoma Clinic in the Pediatric Division of a tertiary eye care center, and to evaluate the contributing factors.
This descriptive type of case series was conducted between May 1999 and May 2002 at the Retinoblastoma Clinic of King Khaled Eye Specialist Hospital, Riyadh, Kingdom of Saudi Arabia. Retinoblastoma patients/siblings were surveyed when they attended the clinics. Each family was interviewed with the help of a close-ended questionnaire. The sample of patients and their siblings were selected based on inclusion and exclusion criteria, and their charts were reviewed.
The study included 260 retinoblastoma patients and their siblings, 134 (51.5%) were males, and 126 (48.5%) were females. One hundred and forty-seven (56.5%) of the retinoblastoma patients/siblings in the sample were scheduled for follow up. One hundred and sixty-eight (64.6%) of retinoblastoma families were contacted by phone and reminded of their children's appointments, 37 (14.2%) were not contacted, and for 55 (21.2%) of the sample subjects, it was not known whether contact was made or even attempted. The compliance rate was 86.2%. One hundred and ninety-five (95.1%) of non-contacted patients/siblings' families attended subsequently. One hundred and thirty-six (52.3%) felt they faced barriers to treatment. Sixty-eight (26.2%) completed treatment, and 175 (67.3%) were still being followed up in the Retinoblastoma Clinic. Six factors were found to influence compliance with clinic appointments: type of appointment, frequency of no shows per clinic, frequency of no shows per patient/sibling, number of non-contacted patients/siblings, telephone contact, and patients with no contact details.
There was a high compliance rate among those scheduled for check up or follow-up. Family education and continuous updating of patients' phone contact numbers can overcome non-compliance and maximize the benefits of the phone call mechanism. Factors affecting compliance found in this study should be used for improving the compliance rate.
调查视网膜母细胞瘤患者及其兄弟姐妹在一家三级眼科护理中心儿科视网膜母细胞瘤诊所的预约就诊依从性和不依从性，并评估相关影响因素。
本描述性病例系列研究于1999年5月至2002年5月在沙特阿拉伯王国利雅得市哈立德国王眼科专科医院的视网膜母细胞瘤诊所进行。视网膜母细胞瘤患者及其兄弟姐妹在就诊时接受调查。每个家庭借助封闭式问卷进行访谈。根据纳入和排除标准选取患者及其兄弟姐妹样本，并查阅其病历。
该研究纳入了260名视网膜母细胞瘤患者及其兄弟姐妹，其中134名（51.5%）为男性，126名（48.5%）为女性。样本中147名（56.5%）视网膜母细胞瘤患者及其兄弟姐妹被安排了随访。通过电话联系了168个（64.6%）视网膜母细胞瘤家庭并提醒他们孩子的预约，37个（14.2%）未被联系，对于55个（21.2%）样本对象，不知道是否进行过联系甚至尝试联系。依从率为86.2%。195个（95.1%）未被联系的患者及其兄弟姐妹家庭随后就诊。136个（52.3%）觉得他们在治疗中面临障碍。68个（26.2%）完成了治疗，175个（67.3%）仍在视网膜母细胞瘤诊所接受随访。发现有六个因素影响诊所预约的依从性：预约类型、每个诊所未就诊的频率、每个患者/兄弟姐妹未就诊的频率、未被联系的患者/兄弟姐妹数量、电话联系以及无联系方式的患者。
在安排了检查或随访的人群中，依从率较高。家庭教育和持续更新患者的电话联系方式可以克服不依从性，并使电话提醒机制的益处最大化。本研究中发现的影响依从性的因素应用于提高依从率。
