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基因炒作时代的遗传信息

Genetic information in the age of genohype.

作者信息

Kakuk Péter

机构信息

Department of Behavioral Sciences, Medical and Health Sciences Centre, University of Debrecen, 4032 Nagyerdei krt. 98, P.O. Box 45, Debrecen, Hungary.

出版信息

Med Health Care Philos. 2006;9(3):325-37. doi: 10.1007/s11019-006-0001-8.

Abstract

We will analyse the representations and conceptualisation of genetics and genetic information in bioethical discourse. Genetics and genetic information is widely believed to be revolutionizing medicine and is sometimes misconceived as having a high predictive value compared to traditional diagnostics. We will attempt to present the inherent limitations of genetic information within its health care context. We will also argue against the exceptional treatment of genetic information that seems to govern bioethical reflection and regulatory approaches. And finally, we will make the claim that geneticization should be seen as a more serious threat to our privacy, autonomy and freedom, than genetic discrimination.

摘要

我们将分析生物伦理话语中遗传学和遗传信息的表现形式及概念。人们普遍认为遗传学和遗传信息正在给医学带来变革,有时还被误解为与传统诊断方法相比具有更高的预测价值。我们将试图阐述遗传信息在医疗保健背景下所固有的局限性。我们还将反对那种似乎主导着生物伦理思考和监管方法的对遗传信息的特殊对待。最后,我们将声称,基因化对我们的隐私、自主性和自由构成的威胁,应被视为比基因歧视更为严重。

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