Hogben Susan, Boddington Paula
Cardiff School of Journalism, Cardiff University, Cardiff, UK.
Commun Med. 2006;3(2):135-46. doi: 10.1515/CAM.2006.016.
Nontherapeutic genetic testing in childhood raises many ethical concerns within and beyond the clinic. We examine six key position statements from Canada, the United Kingdom, and the United States that present ethical guidelines for good practice in clinical nontherapeutic childhood testing. Using a discourse-analytic perspective that focuses on the use of rhetorical contrasts, we identify how these statements argue for recommendations with distinctly different modalities for different types of nontherapeutic genetic testing. This comes about because of the interaction between a number of contrastive descriptions. It is dependent on how the genetic information resulting from testing is differentiated on a cline of seriousness, how such an evaluation is premised on a network of assumptions about the status of reproduction in people's lives, and the related selective deployment of ethical principles that foregrounds the self over others.
儿童期的非治疗性基因检测在临床内外引发了诸多伦理问题。我们审视了来自加拿大、英国和美国的六份关键立场声明,这些声明提出了临床儿童非治疗性检测良好实践的伦理准则。运用聚焦于修辞对比运用的话语分析视角,我们确定了这些声明如何针对不同类型的非治疗性基因检测,以截然不同的方式论证各项建议。这是由于多种对比性描述之间的相互作用所致。它取决于检测所产生的基因信息如何在严重程度的连续统上加以区分,这种评估如何基于关于人们生活中生殖状况的一系列假设,以及相关伦理原则的选择性运用,而这种运用将自我置于他人之上。