Bourgeois Fabienne, Taylor Patrick, Mandl Kenneth
Children's Hospital, Boston, Harvard Medical School, Boston, Massachusetts, USA.
AMIA Annu Symp Proc. 2006;2006:861.
Patient controlled health records(PCHRs) provide widespread and flexible access to integrated medical information. Unique legal challenges arise where the patient is a minor. Variations in laws and statutes concerning minor's rights to privacy and confidentiality, and institutions' local interpretations of them, need to be integrated in the principles governing PCHRs. We propose a legal framework to guide the development of access policies for PCHRs to ensure appropriate privacy and confidentiality protection surrounding minors.
患者自控健康记录(PCHRs)提供了广泛且灵活的综合医疗信息获取途径。当患者为未成年人时,会出现独特的法律挑战。关于未成年人隐私和保密权的法律法规差异,以及各机构对这些法规的本地解读,都需要纳入到管理PCHRs的原则中。我们提出一个法律框架,以指导PCHRs访问政策的制定,确保围绕未成年人的隐私和保密得到适当保护。