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乳腺癌和前列腺癌患者的信息偏好

Patient information preferences among breast and prostate cancer patients.

作者信息

Sharpley C F, Christie D R H

机构信息

East Coast Cancer Centre, John Flynn Hospital, Gold Coast, Queensland, Australia.

出版信息

Australas Radiol. 2007 Apr;51(2):154-8. doi: 10.1111/j.1440-1673.2007.01687.x.

DOI:10.1111/j.1440-1673.2007.01687.x
PMID:17419861
Abstract

Preferences for information about their disease and treatment were collected from 392 patients who had been treated for either breast or prostate cancer an average of 2 years previously. Type of information that they had received, their ratings of its value to them and their preferred format for further information were examined. The most common and most preferred form of information was through doctor interview, followed by educational booklets. Prostate cancer patients preferred videotapes; breast cancer patients tended to prefer individualized approaches including a tour of the department. Effects of age, educational levels, occupational backgrounds and self-reports for anxiety and depression at the time of the survey and at time of diagnosis were analysed. Prostate cancer patients who were most severely depressed showed a preference for not receiving any information at all, perhaps reflecting a tendency towards withdrawal.

摘要

我们收集了392名乳腺癌或前列腺癌患者的信息,这些患者平均在两年前接受过治疗,内容涉及他们对自身疾病及治疗信息的偏好。我们研究了他们所接收的信息类型、他们对这些信息价值的评分以及他们对进一步信息的首选形式。最常见且最受欢迎的信息形式是通过与医生面谈,其次是教育手册。前列腺癌患者更喜欢录像带;乳腺癌患者则倾向于个性化的方式,包括参观科室。我们分析了年龄、教育水平、职业背景以及调查时和诊断时焦虑与抑郁的自我报告的影响。抑郁最严重的前列腺癌患者表现出根本不想接收任何信息的倾向,这或许反映出一种退缩的趋势。

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Patient information preferences among breast and prostate cancer patients.乳腺癌和前列腺癌患者的信息偏好
Australas Radiol. 2007 Apr;51(2):154-8. doi: 10.1111/j.1440-1673.2007.01687.x.
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Effects of interval between diagnosis and time of survey upon preferred information format for prostate cancer patients.诊断与调查时间间隔对前列腺癌患者偏好信息格式的影响。
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引用本文的文献

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Integrated Care in Prostate Cancer (ICARE-P): Nonrandomized Controlled Feasibility Study of Online Holistic Needs Assessment, Linking the Patient and the Health Care Team.前列腺癌综合护理(ICARE-P):在线整体需求评估、连接患者与医疗团队的非随机对照可行性研究
JMIR Res Protoc. 2017 Jul 28;6(7):e147. doi: 10.2196/resprot.7667.
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After initial treatment for primary breast cancer: information needs, health literacy, and the role of health care workers.原发性乳腺癌初始治疗后:信息需求、健康素养及医护人员的作用
Support Care Cancer. 2016 Feb;24(2):563-571. doi: 10.1007/s00520-015-2814-6. Epub 2015 Jun 25.
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Patients and Methods of the PATH Biobank - A Resource for Breast Cancer Research.
PATH生物样本库的患者与方法——乳腺癌研究资源
Geburtshilfe Frauenheilkd. 2014 Apr;74(4):361-369. doi: 10.1055/s-0033-1360263.
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"You need something like this to give you guidelines on what to do": patients' and partners' use and perceptions of a self-directed coping skills training resource.“你需要这样的东西来为你提供指导,告诉你该怎么做”:患者和其伴侣对自我指导应对技能培训资源的使用和看法。
Support Care Cancer. 2013 Dec;21(12):3451-60. doi: 10.1007/s00520-013-1914-4. Epub 2013 Aug 17.
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A longitudinal study of changes in provider-patient interaction in treatment of localized prostate cancer.一项关于局部前列腺癌治疗中医患互动变化的纵向研究。
Support Care Cancer. 2012 Apr;20(4):791-7. doi: 10.1007/s00520-011-1151-7. Epub 2011 Apr 12.
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Cervical cancer patient information-seeking behaviors, information needs, and information sources in South Korea.韩国宫颈癌患者的信息搜索行为、信息需求和信息来源。
Support Care Cancer. 2009 Oct;17(10):1277-83. doi: 10.1007/s00520-009-0581-y. Epub 2009 Jan 27.
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Is the Satisfaction with Cancer Information Profile (SCIP) valid for tailoring information for patients with head and neck cancer?癌症信息概况满意度量表(SCIP)是否适用于为头颈癌患者量身定制信息?
BMC Cancer. 2008 Jun 6;8:164. doi: 10.1186/1471-2407-8-164.