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探索多发性硬化症对夫妻关系的影响:一项试点研究。

Exploring the impact of multiple sclerosis on couples: a pilot study.

作者信息

Blank Carolyn Wilkens, Finlayson Marcia

机构信息

Rehabilitation Institute of Chicago, IL 60611, USA.

出版信息

Can J Occup Ther. 2007 Apr;74(2):134-42.

Abstract

BACKGROUND

Multiple sclerosis (MS) is a disease that affects the everyday lives of people with MS and their partners.

PURPOSE

The purpose of this study was to explore the impact of MS on the lives of two couples living with this disease and their coping strategies.

METHODS

Three semi-structured interviews with each couple were completed. Partners were interviewed together as a couple and separately.

RESULTS

Two major themes emerged from the analysis: increasing awareness of change and use of coping strategies. Participants expressed concerns stemming from the progression of MS and changes related to this progression over time. They discussed several coping strategies.

PRACTICE IMPLICATIONS

These findings offer occupational therapists guidance with their treatment focus in clinical practice and suggest topics for further qualitative research on couples living with MS.

摘要

背景

多发性硬化症(MS)是一种影响多发性硬化症患者及其伴侣日常生活的疾病。

目的

本研究的目的是探讨多发性硬化症对两对患有该疾病的夫妇生活的影响及其应对策略。

方法

对每对夫妇进行了三次半结构化访谈。伴侣们作为夫妇一起接受访谈,也分别接受访谈。

结果

分析得出两个主要主题:对变化的认识不断提高和应对策略的使用。参与者表达了对多发性硬化症进展以及随着时间推移与这种进展相关的变化的担忧。他们讨论了几种应对策略。

实践意义

这些发现为职业治疗师在临床实践中的治疗重点提供了指导,并为进一步对患有多发性硬化症的夫妇进行定性研究提出了主题。

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