Sawyer Susan M, Drew Sarah, Yeo Michele S, Britto Maria T
Centre for Adolescent Health, Royal Children's Hospital, Parkville 3052, Melbourne, Victoria, Australia; Department of Paediatrics, University of Melbourne, Victoria, Australia; Murdoch Childrens Research Institute, Melbourne, Victoria, Australia.
Centre for Adolescent Health, Royal Children's Hospital, Parkville 3052, Melbourne, Victoria, Australia; Department of Paediatrics, University of Melbourne, Victoria, Australia.
Lancet. 2007 Apr 28;369(9571):1481-1489. doi: 10.1016/S0140-6736(07)60370-5.
In this review, we aim to focus attention on the interaction between adolescents with chronic conditions and the health systems that support them. At least 12% of adolescents live with a chronic condition. Some conditions are characterised by increasing incidence (eg, diabetes) or improving survival rates (eg, cystic fibrosis), while others are concerning because of differentially poorer outcomes in adolescents in comparison to both children and adults (eg cancer). Growing evidence suggests that young people with chronic conditions are doubly disadvantaged--engaging in risky behaviours to at least similar if not higher rates as healthy peers, while having the potential for greater adverse health outcomes from these behaviours. In addition to efforts at improving survival, in order to improve their life chances, we need to better understand how the social and emotional outcomes of young people with a chronic disease can be improved, and better support young people's emerging capacity for self-management.
在本综述中,我们旨在关注患有慢性病的青少年与支持他们的卫生系统之间的相互作用。至少12%的青少年患有慢性病。一些疾病的特点是发病率上升(如糖尿病)或生存率提高(如囊性纤维化),而另一些疾病则令人担忧,因为与儿童和成人相比,青少年的预后差异更大(如癌症)。越来越多的证据表明,患有慢性病的年轻人处于双重不利地位——他们从事危险行为的比例至少与健康同龄人相似,甚至更高,而这些行为可能带来更严重的不良健康后果。除了努力提高生存率外,为了改善他们的生活机会,我们需要更好地了解如何改善患有慢性病的年轻人的社会和情感结局,并更好地支持年轻人逐渐形成的自我管理能力。