Trombert-Paviot B, Couris C-M, Couray-Targe S, Rodrigues J-M, Colin C, Schott A-M
Département de Santé Publique et de l'Information Médicale, Pavillon 15, CHU de Saint-Etienne, Hôpital Saint-Jean-Bonnefonds, Université de Saint-Etienne, 42055 Saint-Etienne cedex 01, France.
Rev Epidemiol Sante Publique. 2007 Jun;55(3):203-11. doi: 10.1016/j.respe.2007.01.029.
Since 2001, the French national case mix program is allowed by law to use an enciphering algorithm named "FOIN" to produce a unique anonymous identifier in order to crosslink, within and across hospitals, discharge abstracts from a given patient. This algorithm "thrashes" the person's health insurance number, date of birth and gender. Before using information produced by the case mix program, either for case mix payment or for epidemiology research or for assessing care approaches, the quality of linkage must be evaluated.
Foin error flags were first assessed in the 2002 Rhône-Alpes regional case mix database. Second, for the two university hospitals of Lyon and Saint-Etienne, double identifiers (two or more Foin identifiers for the same patient) and collisions (a single Foin identifier for at least two patients) were compared with others identifiers: administrative identifier and an anonymous identifier produced by Anonymat software from name, forename and date of birth. Third, Foin error flags are crossed with Foin double identifier or collision mistakes.
First, among 1,668,971 hospital discharge abstracts from the regional case mix database, 206,710 (12.4%) had at least one Foin error flag. The most frequent error flag (93026 [5.5%] stays) was due to the lack of the three identifying variables. The greatest number for error flags concerned the stays of newborns (38.5%) and those of public hospitals (17.3%). Second, Foin created a few double identifiers: 1.2% among 137,236 patients from university hospital of Lyon and 0.3% among 39512 patients from university hospital of Saint-Etienne. The collisions concerned 7776 (5.7%) patients from Lyon and 460 (1.2%) from Saint-Etienne. The identifier produced by Anonymat performed better than the one produced by Foin: 99.6% from the two university hospitals. Third, less than 3% of stays without Foin error flag nevertheless had mistakes on Foin when compared with others identifiers.
The overall assessment is not in favour of a quality threshold using the Foin identifier on a routine basis except in some areas and if certain activities like neonatology are excluded. There are several ways to improve the linkage of health data.
自2001年起,法国国家病例组合项目依法获准使用一种名为“FOIN”的加密算法生成唯一的匿名标识符,以便在医院内部及不同医院之间,将特定患者的出院摘要进行交叉关联。该算法对个人的健康保险号码、出生日期和性别进行“扰乱”。在将病例组合项目产生的信息用于病例组合支付、流行病学研究或评估护理方法之前,必须对关联质量进行评估。
首先在2002年罗纳-阿尔卑斯大区病例组合数据库中评估FOIN错误标志。其次,对于里昂和圣艾蒂安的两家大学医院,将双重标识符(同一患者有两个或更多FOIN标识符)和冲突情况(至少两名患者有同一个FOIN标识符)与其他标识符进行比较:行政标识符以及由Anonymat软件根据姓名、名字和出生日期生成的匿名标识符。第三,将FOIN错误标志与FOIN双重标识符或冲突错误进行交叉分析。
首先,在大区病例组合数据库的1,668,971份医院出院摘要中,206,710份(12.4%)至少有一个FOIN错误标志。最常见的错误标志(93026份[5.5%]住院记录)是由于缺少三个识别变量。错误标志数量最多的是新生儿住院记录(38.5%)和公立医院的住院记录(17.3%)。其次,FOIN产生了一些双重标识符:里昂大学医院137,236名患者中的1.2%,圣艾蒂安大学医院39512名患者中的0.3%。冲突涉及里昂的7776名(5.7%)患者和圣艾蒂安的460名(1.2%)患者。Anonymat生成的标识符比FOIN生成的标识符表现更好:两家大学医院的比例为99.6%。第三,与其他标识符相比,没有FOIN错误标志的住院记录中,不到3%在FOIN方面仍存在错误。
总体评估结果不支持常规使用FOIN标识符设定质量阈值,某些领域除外,并且如果排除新生儿学等特定活动的话。有几种方法可以改善健康数据的关联。