自闭症谱系障碍的复发风险：一项关于家长认知的研究。
Recurrence risk in Autism Spectrum Disorder: a study of parental knowledge.
作者信息
Whitelaw Charlotte, Flett Peter, Amor David J
机构信息
Calvary Health Care Tasmania, Hobart, Tasmania, Australia.
出版信息
J Paediatr Child Health. 2007 Nov;43(11):752-4. doi: 10.1111/j.1440-1754.2007.01156.x. Epub 2007 Jun 29.
AIM
To describe recurrence risk information currently being obtained by families affected by Autism Spectrum Disorder (ASD).
METHODS
Structured telephone interview of parents of 21 children who received a diagnosis of ASD at Calvary Health Care Tasmania, Hobart, Australia between May 2005 and May 2006.
RESULTS
Only one of the 21 parents knew their true recurrence risk. Many overestimated their risk substantially, and in four cases this had led to a decision against increasing family size. Eleven parents said they had received no information about recurrence risk, and only one cited medical practitioners as a source of information about recurrence risk.
CONCLUSION
Current provision of information about recurrence risk to families affected by ASD is inadequate.
目的
描述目前受自闭症谱系障碍（ASD）影响的家庭所获取的复发风险信息。
方法
对2005年5月至2006年5月间在澳大利亚霍巴特市的塔斯马尼亚加尔各答医疗保健中心被诊断为ASD的21名儿童的家长进行结构化电话访谈。
结果
21名家长中只有1人知道其真实的复发风险。许多家长大幅高估了风险，有4例因此导致了不增加家庭人口的决定。11名家长表示他们没有收到任何关于复发风险的信息，只有1人提到医生是复发风险信息的来源。
结论
目前向受ASD影响的家庭提供的复发风险信息不足。
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