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欧洲的植入前基因诊断(PGD):立法的多样性对社会及其公民构成挑战。

Preimplantation genetic diagnosis (PGD) in Europe: diversity of legislation a challenge to the community and its citizens.

作者信息

Soini S

机构信息

University of Helsinki, Faculty of Law, Yliopistokatu, Helsinki, Finland.

出版信息

Med Law. 2007 Jun;26(2):309-23.

Abstract

Preimplantation genetic diagnosis (PGD) aims to safeguard the reproductive confidence of couples who have an increased risk of having a child with a serious hereditary disease. Non-directive genetic counselling is an essential part of PGD. Lately, performance of PGD for some new and non-medical indications, such as selecting for a tissue-matching embryo for a saviour sibling, or sex-selection for family-balancing, has raised ethical concerns. Who decides when to perform PGD, and for which conditions? The European member states have very diverse regulation on PGD. Some countries totally ban PGD, while the others keep close track of the new applications. The people in need of PGD seek it in the other member states. These cross-border treatments cause psychological stress and pose many so far unresolved legal questions. The individuals need more information about all the aspects of PGD. This article analyses contemporary indications for PGD in Europe and relevant ethical discussion, and second, shows the diversity in regulation and reflects the consequences thereof.

摘要

植入前基因诊断(PGD)旨在保障那些生育患有严重遗传性疾病孩子风险增加的夫妇的生殖信心。非指导性遗传咨询是PGD的重要组成部分。最近,PGD用于一些新的非医学适应症,如为挽救同胞选择组织匹配胚胎或为家庭平衡进行性别选择,引发了伦理问题。谁来决定何时进行PGD以及针对哪些情况?欧洲成员国对PGD的监管差异很大。一些国家完全禁止PGD,而其他国家则密切关注新的应用。需要PGD的人会在其他成员国寻求治疗。这些跨境治疗会造成心理压力,并带来许多迄今尚未解决的法律问题。个人需要更多关于PGD各个方面的信息。本文首先分析了欧洲PGD的当代适应症及相关伦理讨论,其次展示了监管的多样性并反映了其后果。

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