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评估烧伤儿童康复活动假期的挑战:来自一个烧伤营五年期间的定性和定量结果数据。

The challenge of evaluating rehabilitative activity holidays for burn-injured children: qualitative and quantitative outcome data from a Burns Camp over a five-year period.

作者信息

Gaskell Sarah L

机构信息

Booth Hall Children's Hospital, Manchester, UK.

出版信息

Dev Neurorehabil. 2007 Apr-Jun;10(2):149-60. doi: 10.1080/13638490701217610.

Abstract

Specialized holidays for burn-injured children are currently considered an important part of their rehabilitation. These holidays, or Camps, aim to help children face the challenges of their burn injury and treatment in a fun and supportive environment. Manchester Children's Burns Camps have been run by professionals from the Burns Unit at Booth Hall Children's Hospital together with volunteers since 1983. Formal evaluation has been a crucial component of these Camps since 1999. The purpose of this study was to summarize the findings of the evaluation process over the last 5 years, and to discuss any issues raised by the results. Standardized measures were administered to 97 children and their parents over this time period. These measures, designed to assess self-esteem, social relationships and general emotional and behavioural well-being, were completed before and after the children attended the Camp. The quantitative data showed little consistent evidence of change on these measures over the 5 years. However, the qualitative data shows consistent themes of increased confidence and improved coping with the burn injury, amongst others. The discrepancy between the quantitative and qualitative results is discussed, and implications and challenges for further evaluation of Burns Camps are raised.

摘要

目前,为烧伤儿童设立的专门假期被视为他们康复过程的重要组成部分。这些假期活动,即营地活动,旨在帮助孩子们在充满乐趣且相互支持的环境中面对烧伤及治疗带来的挑战。自1983年以来,曼彻斯特儿童烧伤营地一直由布斯霍尔儿童医院烧伤科的专业人员与志愿者共同运营。自1999年起,正式评估就一直是这些营地活动的关键组成部分。本研究的目的是总结过去5年评估过程的结果,并讨论结果所引发的任何问题。在此期间,对97名儿童及其家长实施了标准化测评。这些测评旨在评估自尊、社会关系以及总体情绪和行为健康状况,在孩子们参加营地前后分别进行。定量数据显示,在这5年里,这些测评指标几乎没有一致的变化证据。然而,定性数据显示出一些一致的主题,比如孩子们的自信心增强,应对烧伤的能力有所提高等。文中讨论了定量和定性结果之间的差异,并提出了对烧伤营地进一步评估的意义和挑战。

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