Zeiler Kristin
Tema Health and Society, Department of Health and Society, Linköping University, Sweden.
Hum Fertil (Camb). 2007 Sep;10(3):165-74. doi: 10.1080/14647270701305491.
Studies have been made on attitudes to and experiences of women and men who have undergone pre-implantation genetic diagnosis (PGD), or who are regarded as potential users of this diagnostic method. Few studies have been conducted regarding the attitudes to and experiences of medical professionals as regards PGD. This paper reports on findings from such a qualitative study in which 18 semi-structured interviews were performed with geneticists and gynaecologists in Italy, Sweden and the UK. Interviewees emphasized, among other things, the importance of choice provision. Interviewees also told stories that indicated the many ways through which choice was feared to be hampered - or was hampered. A similar emphasis on the importance of PGD as one more alternative to choose between, for 'high-risk' couples, is not found in studies on the experiences, attitudes and views of potential, or actual, users of PGD.
针对接受过植入前基因诊断(PGD)的女性和男性,或被视为该诊断方法潜在使用者的女性和男性的态度及经历展开了研究。关于医学专业人员对PGD的态度和经历的研究较少。本文报告了这样一项定性研究的结果,该研究对意大利、瑞典和英国的遗传学家和妇科医生进行了18次半结构化访谈。受访者特别强调了提供选择的重要性。受访者还讲述了一些故事,这些故事表明人们担心选择会以多种方式受到阻碍——或者已经受到阻碍。在关于PGD潜在或实际使用者的经历、态度和观点的研究中,没有发现类似的强调PGD对于“高风险”夫妇而言是又一个可供选择的重要替代方案的情况。