Faithfull S
Academic Nursing Unit, Royal Marsden Hospital, London England.
J Adv Nurs. 1991 Aug;16(8):939-46. doi: 10.1111/j.1365-2648.1991.tb01798.x.
The aim of this study was to establish whether somnolence syndrome existed in adults by exploring their experiences after receiving cranial radiotherapy. Somnolence syndrome is described as excessive sleep, drowsiness, lethargy and anorexia and was found to occur in these patients. A description of the phenomenon was drawn from triangulation of the data. For 6 weeks following radiotherapy, the participants completed a diary consisting of two elements, a quantitative visual analogue scale and an open diary. This was followed by a qualitative semi-structured interview. Patients experienced sleepiness which they described as 'exhausted doing nothing' and that any activity was a 'struggle'. Some individuals described sensory changes, deafness and an increase in leg and arm weakness. These experiences presented a series of unexpected changes in their health which resulted in fear of treatment failure and disease recurrence. The study suggests that more information should be provided for patients on the side-effects that occur after radiotherapy has finished. Somnolence syndrome presented for the participants an experience which is not adequately described in previous literature. The nurse has an important role in providing information to prepare patients for their experience and more knowledge about this phenomenon is required for these patients to be informed adequately.
本研究的目的是通过探究成年患者接受颅脑放疗后的经历，来确定是否存在嗜睡综合征。嗜睡综合征表现为过度睡眠、困倦、无精打采和食欲不振，在这些患者中被发现。对该现象的描述来自于数据的三角测量法。放疗后的6周内，参与者完成了一本包含两个部分的日记，一个是定量视觉模拟量表，另一个是开放式日记。随后进行了定性的半结构化访谈。患者经历了嗜睡，他们将其描述为“什么都不做也疲惫不堪”，任何活动都是一场“挣扎”。一些人描述了感觉变化、耳聋以及腿部和手臂无力加剧。这些经历在他们的健康方面呈现出一系列意想不到的变化，导致他们担心治疗失败和疾病复发。该研究表明，应该为患者提供更多关于放疗结束后出现的副作用的信息。嗜睡综合征给参与者带来了一种以往文献中未充分描述的经历。护士在为患者提供信息，使其为自身经历做好准备方面起着重要作用，而这些患者需要更多关于这一现象的知识，以便得到充分的告知。
