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脊髓损伤患儿尿流改道的结果

Outcomes of urinary diversion in children with spinal cord injuries.

作者信息

Merenda Lisa A, Duffy Theresa, Betz Randal R, Mulcahey Mary Jane, Dean Gregory, Pontari Michel

机构信息

Shriners Hospitals for Children, 3551 N. Broad St., Philadelphia, PA 19140, USA.

出版信息

J Spinal Cord Med. 2007;30 Suppl 1(Suppl 1):S41-7. doi: 10.1080/10790268.2007.11753968.

Abstract

PURPOSE

To gain a better understanding of the outcomes of the Mitrofanoff procedure for urinary diversion in children with spinal cord injury (SCI).

DESIGN

Descriptive retrospective.

PARTICIPANTS/METHODS: Individuals 6 to 27 years of age with SCI with at least 1 year follow-up after the Mitrofanoff procedure. Objective data collected via retrospective chart review include general demographics and medical/surgical history. Data collected via structured telephone interview include history of adverse urological events, bladder management, bladder management independence scores, patient satisfaction, and quality of life.

RESULTS

Sixteen subjects (13 female, 3 male) with a mean age of 19 years (range 6-27 y) who underwent the Mitrofanoff procedure were interviewed. Length of postoperative follow-up ranged from 1 to 8 years (mean 4.25 y). Complications included stomal stenosis 25% (n=4) with a mean of 19 months to first occurrence of stenosis; urethral incontinence 75% (n=12); renal/bladder calculi 19% (n = 3); and stomal leakage 44% (n=7). Independence scores for bladder management after the Mitrofanoff procedure improved in 84% of subjects with tetraplegia and 25% of subjects with paraplegia. Eighty-eight percent (n 14) were satisfied with the procedure, while 12% (n=2) were somewhat satisfied. A thematic analysis of quality of life revealed that freedom (35%) and independence (35%) were most commonly cited.

CONCLUSION

While some subjects experienced complications, satisfaction was relatively high and level of independence in bladder management was greatly improved. This study demonstrates that the Mitrofanoff procedure is a beneficial option to improve independence and ease of bladder management in children with SCI.

摘要

目的

更好地了解米氏手术用于脊髓损伤(SCI)儿童尿流改道的效果。

设计

描述性回顾研究。

参与者/方法:年龄在6至27岁、接受米氏手术后至少随访1年的SCI患者。通过回顾病历收集的客观数据包括一般人口统计学信息和医疗/手术史。通过结构化电话访谈收集的数据包括泌尿系统不良事件史、膀胱管理情况、膀胱管理独立评分、患者满意度和生活质量。

结果

对16名接受米氏手术的受试者(13名女性,3名男性)进行了访谈,平均年龄19岁(范围6 - 27岁)。术后随访时间为1至8年(平均4.25年)。并发症包括造口狭窄25%(n = 4),首次出现狭窄的平均时间为19个月;尿道失禁75%(n = 12);肾/膀胱结石19%(n = 3);造口漏尿44%(n = 7)。米氏手术后,84%的四肢瘫受试者和25%的截瘫受试者膀胱管理独立评分有所改善。88%(n = 14)的受试者对该手术满意,12%(n = 2)的受试者 somewhat satisfied(此处英文原文有误,推测可能是“somewhat dissatisfied”,若为“somewhat dissatisfied”则翻译为“有些不满意”)。生活质量的主题分析显示,最常提到的是自由(35%)和独立(35%)。

结论

虽然一些受试者出现了并发症,但满意度相对较高,膀胱管理的独立程度有了很大提高。本研究表明,米氏手术是改善SCI儿童独立性和膀胱管理便利性的有益选择。

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