Wilkins Krista Lynn, Woodgate Roberta Lynn
Faculty of Nursing, University of Manitoba, Winnipeg, Manitoba, Canada.
Cancer Nurs. 2007 Sep-Oct;30(5):E29-34. doi: 10.1097/01.NCC.0000290811.06948.2c.
When a child undergoes bone marrow transplant (BMT), the entire family is affected by the demands of the transitions encountered throughout the BMT experience. Although there is a growing body of knowledge on how healthy siblings adjust to the BMT experience, there is still much to be learned. Part of a larger study aimed at detailing healthy siblings' lived experiences of BMT, this article presents findings specific to one of the study's objectives that focused on understanding siblings' perspectives of how nurses and other health professionals can best support siblings throughout the BMT trajectory. A qualitative research study guided by the philosophy of hermeneutic phenomenology was conducted. Eight siblings of pediatric BMT recipients were recruited. Semistructured, open-ended interviews, demographic data, and field notes were the primary sources of data. Interview transcripts were analyzed and interpreted using van Manen's approach. Seven themes emerged: (1) include me in the definition of "family," (2) be caring, (3) share information with me, (4) give me choices, (5) help me share my feelings, (6) provide opportunities for me to meet my peers, and (7) create a healthy hospital environment. Findings showed that siblings have definite thoughts about how nurses and other health professionals should support them, but their support needs are not being met.
当一个孩子接受骨髓移植（BMT）时，整个家庭都会受到骨髓移植过程中所经历的各种转变的影响。尽管关于健康的兄弟姐妹如何适应骨髓移植经历的知识越来越多，但仍有很多需要了解的地方。作为一项旨在详细描述健康兄弟姐妹骨髓移植生活经历的大型研究的一部分，本文呈现了该研究其中一个目标的具体发现，该目标聚焦于了解兄弟姐妹对于护士和其他医疗专业人员如何在骨髓移植全过程中最好地支持他们的看法。开展了一项以诠释现象学哲学为指导的定性研究。招募了8名儿科骨髓移植受者的兄弟姐妹。半结构化、开放式访谈、人口统计学数据和实地记录是主要的数据来源。使用范曼恩的方法对访谈记录进行了分析和解读。出现了七个主题：（1）将我纳入“家庭”的定义中，（2）关心他人，（3）与我分享信息，（4）给我选择，（5）帮助我分享感受，（6）为我提供与同龄人见面的机会，（7）营造健康的医院环境。研究结果表明，兄弟姐妹对于护士和其他医疗专业人员应如何支持他们有明确的想法，但他们的支持需求并未得到满足。
