患有慢性病儿童的单亲家长：一种研究不足的现象。
Single parents of children with chronic illness: an understudied phenomenon.
作者信息
Brown Ronald T, Wiener Lori, Kupst Mary Jo, Brennan Tara, Behrman Richard, Compas Bruce E, David Elkin T, Fairclough Diane L, Friebert Sarah, Katz Ernest, Kazak Anne E, Madan-Swain Avi, Mansfield Nancy, Mullins Larry L, Noll Robert, Patenaude Andrea Farkas, Phipps Sean, Sahler O J, Sourkes Barbara, Zeltzer Lonnie
机构信息
Temple University, College of Health 3307 North Broad Street, 300 Jones Hall, Philadelphia, PA 19140, USA.
出版信息
J Pediatr Psychol. 2008 May;33(4):408-21. doi: 10.1093/jpepsy/jsm079. Epub 2007 Sep 29.
OBJECTIVE
To examine the chronic illness literature and evaluate the impact on single parenting and children and adolescents with chronic illness.
METHODS
We conducted literature reviews of relevant research pertaining to single-parent families on PubMed, Medline, and PsychINFO and also surveyed pertinent book chapters and all of the articles from the Journal of Pediatric Psychology since 1987 for articles, specifically examining the potential associations of single (lone) parenting versus two-parent households on children's psychosocial functioning and the impact of the child's illness on caregiver functioning.
RESULTS
While the literature has examined and discussed the stressors associated with parenting a child with an illness, including the impact of illness on finances, family roles, and caregiver burden, few studies have examined single parents of children and adolescents with chronic illnesses and related stressors stemming from being a lone caregiver.
CONCLUSIONS
There is a dearth of studies examining the association between lone parenting and psychosocial functioning among children and adolescents with chronic illnesses. Specific questions necessitating future investigation are summarized and recommendations are made for future research in this important area of inquiry.
目的
研究慢性病相关文献，并评估其对单亲家庭以及患有慢性病的儿童和青少年的影响。
方法
我们在PubMed、Medline和PsychINFO上对与单亲家庭相关的研究进行了文献综述，还查阅了相关书籍章节以及自1987年以来《儿科心理学杂志》上的所有文章，特别考察单亲（独自）抚养与双亲家庭对儿童心理社会功能的潜在关联，以及孩子的疾病对照顾者功能的影响。
结果
虽然文献已经研究并讨论了抚养患病孩子所带来的压力源，包括疾病对经济、家庭角色和照顾者负担的影响，但很少有研究考察患有慢性病的儿童和青少年的单亲父母以及作为唯一照顾者所产生的相关压力源。
结论
缺乏关于单亲抚养与患有慢性病的儿童和青少年心理社会功能之间关联的研究。总结了未来需要调查的具体问题，并对这一重要研究领域的未来研究提出了建议。
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