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关于一个在欧洲层面可互操作的法国健康识别号的提议。

Proposal of a French health identification number interoperable at the European level.

作者信息

Quantin Catherine, Allaert François-André, Avillach Paul, Riandey Benoît, Fieschi Marius, Fassa Maniane, Cohen Olivier

机构信息

Service de Biostatistique et Informatique Médicale, CHU de Dijon, BP 77908, 21079 Dijon Cedex, INSERM EMI 0106, France.

出版信息

Stud Health Technol Inform. 2007;129(Pt 1):503-7.

Abstract

The French ministry of Health is setting up the Personal Medical Record (PMR). This innovative tool has long been expected by French Health Authorities, Associations of Patients, other Health's associations, those defending Individual Liberties and the French National Data Protection Authority. The PMR will lead to improvements in many areas such as Diagnosis (Research and monitoring) Healthcare (Management of emergencies, urgent situations, Temporal health monitoring and evaluation), Therapy (Cohorts of patients for Clinical trials and epidemiological studies). The PMR will foster safe healthcare management, clinical research and epidemiological studies. Nevertheless, it raises many important questions regarding duplicates and the quality, precision and coherence of the linkage with other health data coming from different sources. The currently planned identifying process raises many questions with regard to its ability to deal with potential duplicates and to perform data linkage with other health data sources. Through this article, using the electronic health records, we develop and propose an identification process to improve the French PMR. Our proposed unique patient identifier will guarantee the security, confidentiality and privacy of the personal data, and will prove to be particularly useful for health planning, health policies and research as well as clinical and epidemiological studies. Finally, it will certainly be interoperable with other European health information systems. We propose here an alternative identification procedure that would allow France to broaden the scope of its PMR project by making it possible to contribute to public health research and policy while increasing interoperability with European health information systems and preserving the confidentiality of the data.

摘要

法国卫生部正在建立个人医疗记录(PMR)。这一创新工具长期以来一直为法国卫生当局、患者协会、其他卫生协会、维护个人自由的团体以及法国国家数据保护局所期待。PMR将在许多领域带来改善,如诊断(研究与监测)、医疗保健(紧急情况管理、突发事件、临时健康监测与评估)、治疗(临床试验和流行病学研究的患者队列)。PMR将促进安全的医疗管理、临床研究和流行病学研究。然而,它引发了许多重要问题,涉及重复数据以及与来自不同来源的其他健康数据的链接质量、准确性和一致性。目前计划的识别过程在处理潜在重复数据以及与其他健康数据源进行数据链接的能力方面引发了许多问题。通过本文,我们利用电子健康记录开发并提出一种识别过程,以改进法国的PMR。我们提议的唯一患者标识符将保证个人数据的安全性、保密性和隐私性,并且将被证明对健康规划、卫生政策和研究以及临床和流行病学研究特别有用。最后,它肯定能够与其他欧洲健康信息系统实现互操作。我们在此提出一种替代识别程序,这将使法国能够扩大其PMR项目的范围,从而有可能为公共卫生研究和政策做出贡献,同时增强与欧洲健康信息系统的互操作性并保护数据的保密性。

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