Kongsved Sissel Marie, Basnov Maja, Holm-Christensen Kurt, Hjollund Niels Henrik
Department of Clinical Social Medicine, Centre of Public Health, Central Denmark Region, Aarhus, Denmark.
J Med Internet Res. 2007 Sep 30;9(3):e25. doi: 10.2196/jmir.9.3.e25.
Research in quality of life traditionally relies on paper-and-pencil questionnaires. Easy access to the Internet has inspired a number of studies that use the Internet to collect questionnaire data. However, Internet-based data collection may differ from traditional methods with respect to response rate and data quality as well as the validity and reliability of the involved scales.
We used a randomized design to compare a paper-and-pencil questionnaire with an Internet version of the same questionnaire with respect to differences in response rate and completeness of data.
Women referred for mammography at a Danish public hospital from September 2004 to April 2005, aged less than 67 years and without a history of breast cancer, were eligible for the study. The women received the invitation to participate along with the usual letter from the Department of Radiology. A total of 533 women were invited to participate. They were randomized to receive either a paper questionnaire, with a prepaid return envelope, or a guideline on how to fill in the Internet-based version online. The questionnaire consisted of 17 pages with a total of 119 items, including the Short Form-36, Multidimensional Fatigue Inventory-20, Hospital Anxiety and Depression Scale, and questions regarding social status, education level, occupation, and access to the Internet. Nonrespondents received a postal reminder giving them the option of filling out the other version of the questionnaire.
The response rate before the reminder was 17.9% for the Internet group compared to 73.2% for the paper-and-pencil group (risk difference 55.3%, P < .001). After the reminder, when the participant could chose between versions of the questionnaire, the total response rate for the Internet and paper-and-pencil group was 64.2% and 76.5%, respectively (risk difference 12.2%, P = .002). For the Internet version, 97.8% filled in a complete questionnaire without missing data, while 63.4% filled in a complete questionnaire for the paper-and-pencil version (risk difference 34.5%, P < .001).
The Internet version of the questionnaire was superior with respect to completeness of data, but the response rate in this population of unselected patients was low. The general population has yet to become more familiar with the Internet before an online survey can be the first choice of researchers, although it is worthwhile considering within selected populations of patients as it saves resources and provides more complete answers. An Internet version may be combined with the traditional version of a questionnaire, and in follow-up studies of patients it may be more feasible to offer Internet versions.
生活质量研究传统上依赖于纸质问卷。互联网的便捷使用催生了一些利用互联网收集问卷数据的研究。然而,基于互联网的数据收集在回复率、数据质量以及所涉量表的有效性和可靠性方面可能与传统方法有所不同。
我们采用随机设计,比较纸质问卷与同一问卷的互联网版本在回复率和数据完整性方面的差异。
2004年9月至2005年4月在丹麦一家公立医院接受乳房X线检查的年龄小于67岁且无乳腺癌病史的女性符合研究条件。这些女性在收到放射科的常规信件时收到参与邀请。共有533名女性被邀请参与。她们被随机分为两组,一组收到带有预付回邮信封的纸质问卷,另一组收到关于如何在线填写互联网版本问卷的指南。问卷共17页,包含119个项目,包括简短健康调查问卷-36、多维疲劳量表-20、医院焦虑抑郁量表,以及关于社会地位、教育水平、职业和互联网使用情况的问题。未回复者收到一封邮政提醒信,让他们选择填写另一版本的问卷。
提醒前,互联网组的回复率为17.9%,而纸质问卷组为73.2%(风险差异55.3%,P < .001)。提醒后,当参与者可以在问卷版本之间进行选择时,互联网组和纸质问卷组的总回复率分别为64.2%和76.5%(风险差异12.2%,P = .002)。对于互联网版本,97.8%的人填写了完整问卷且无缺失数据,而纸质问卷版本这一比例为63.4%(风险差异34.5%,P < .001)。
问卷的互联网版本在数据完整性方面更具优势,但在这群未经过筛选的患者中回复率较低。在在线调查成为研究人员的首选之前,普通人群还需要更熟悉互联网,不过在特定患者群体中考虑采用互联网版本是值得的,因为它节省资源且能提供更完整的答案。互联网版本可以与问卷的传统版本相结合,在患者的后续研究中提供互联网版本可能更可行。