Atsuta Yoshiko, Suzuki Ritsuro, Yoshimi Ayami, Gondo Hisashi, Tanaka Junji, Hiraoka Akira, Kato Koji, Tabuchi Ken, Tsuchida Masahiro, Morishima Yasuo, Mitamura Makoto, Kawa Keisei, Kato Shunichi, Nagamura Tokiko, Takanashi Minoko, Kodera Yoshihisa
Department of HSCT Data Management, Nagoya University, School of Medicine.
Rinsho Ketsueki. 2007 Nov;48(11):1462-9.
There are four registries of hematopoietic cell transplant in Japan; the Japan Society for Hematopoietic Cell Transplantation (JSHCT), Japanese Society of Pediatric Hematology, Japan Marrow Donor Program and Japan Cord Blood Bank Network, each playing an important role in society by reporting the number and outcomes of transplantations and contributing new findings obtained from studies on individual topics. However, there have been a number of difficulties with analyzing data in overlapping registries and multiple databases at centers affiliated with each of the four registry organizations. JSHCT was pivotal in orchestrating the computerization and unification of hematopoietic stem cell transplant registries for the purpose of resolving these issues and providing a more accurate awareness of hematopoietic stem cell transplantations performed in Japan. JSHCT played a central role in developing the "Transplant Registry Unified Management Program (TRUMP)" to enable transplant institutes to manage patient information with emphasis on convenience to institutes, safety of patient information, and quality of data management. While enhancing domestic registries, the program seeks to coordinate with other hematopoietic cell transplant registries around the world to contribute to the development of registries throughout Asia.
日本有四个造血细胞移植登记处，分别是日本造血细胞移植学会（JSHCT）、日本儿科学会血液学分会、日本骨髓捐赠项目和日本脐带血库网络。它们各自通过报告移植数量和结果，并提供从各个专题研究中获得的新发现，在社会中发挥着重要作用。然而，在分析四个登记组织各自附属中心的重叠登记处和多个数据库中的数据时，出现了许多困难。为了解决这些问题，并更准确地了解日本进行的造血干细胞移植情况，JSHCT在协调造血干细胞移植登记处的计算机化和统一方面发挥了关键作用。JSHCT在开发“移植登记统一管理程序（TRUMP）”方面发挥了核心作用，以使移植机构能够管理患者信息，同时注重机构的便利性、患者信息的安全性以及数据管理的质量。在加强国内登记处的同时，该计划还寻求与世界各地的其他造血细胞移植登记处进行协调，为整个亚洲登记处的发展做出贡献。
