Suppr超能文献

大疱性表皮松解症:一例关于转运、治疗及护理的病例研究

Epidermolysis bullosa: a case study in transport, treatment, and care.

作者信息

Price-Douglas Webra, Diehl-Svrjcek Beth

机构信息

Maryland Regional Neonatal Transport Program, The Johns Hopkins Hospital, Baltimore MD 21287, USA.

出版信息

Adv Neonatal Care. 2007 Dec;7(6):289-94. doi: 10.1097/01.ANC.0000304967.46708.ea.

Abstract

There are skin rashes, lesions, and disorders in the neonatal period that require emergent assessment and consultation. A neonate presented with epidermolysis bullosa and provided an opportunity for learning about this condition and various dermatologic resources, primarily DermAtlas. The neonate with suspected epidermolysis bullosa that is delivered in a community setting usually requires transport to a neonatal intensive care unit with pediatric subspecialty care. A case study involving the transport of a neonate with this condition is reviewed, followed by a discussion of the etiology, incidence, pathogenesis, diagnosis, and nursing care before and during transport and parental considerations. The resources available in the neonatal community, primarily DermAtlas, for the identification of epidermolysis bullosa and other dermatological conditions is explored.

摘要

新生儿期存在需要紧急评估和会诊的皮疹、皮损及病症。一名患有大疱性表皮松解症的新生儿为了解这种病症及各种皮肤科资源(主要是《皮肤病图谱》)提供了契机。在社区环境中分娩的疑似大疱性表皮松解症新生儿通常需要转运至具备儿科亚专业护理的新生儿重症监护病房。本文回顾了一例涉及此类病症新生儿转运的案例研究,随后讨论了病因、发病率、发病机制、诊断、转运前后的护理以及家长的注意事项。还探讨了新生儿社区中用于识别大疱性表皮松解症和其他皮肤病的可用资源,主要是《皮肤病图谱》。

相似文献

2
Epidermolysis bullosa: pathophysiology and nursing care.大疱性表皮松解症:病理生理学与护理
Neonatal Netw. 2004 Nov-Dec;23(6):25-32. doi: 10.1891/0730-0832.23.6.25.
3
Factors affecting quality of life in epidermolysis bullosa.影响大疱性表皮松解症患者生活质量的因素。
Expert Rev Pharmacoecon Outcomes Res. 2010 Jun;10(3):329-38. doi: 10.1586/erp.10.28.
6
Case study: child suffering from epidermolysis bullosa.
Midwives Chron. 1983 Nov;96(1150):386-91.
7
Management of severe blistering disorders.重度水疱性疾病的管理
Semin Neonatol. 2000 Nov;5(4):321-4. doi: 10.1053/siny.2000.0017.
9
Epidermolysis bullosa: where do we stand?大疱性表皮松解症:我们处于什么位置?
Indian J Dermatol Venereol Leprol. 2011 Jul-Aug;77(4):431-8. doi: 10.4103/0378-6323.82393.

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验