Barnes Douglas, Linton Judith L, Sullivan Elroy, Bagley Anita, Oeffinger Donna, Abel Mark, Damiano Diane, Gorton George, Nicholson Diane, Romness Mark, Rogers Sarah, Tylkowski Chester
Shriners Hospital for Children, Houston, TX 77030, USA.
J Pediatr Orthop. 2008 Jan-Feb;28(1):97-102. doi: 10.1097/bpo.0b013e31815a60e6.
The Pediatric Outcomes Data Collection Instrument (PODCI) was developed in 1994 as a patient-based tool for use across a broad age range and wide array of musculoskeletal disorders, including children with cerebral palsy (CP). The purpose of this study was to establish means and SDs of the Parent PODCI measures by age groups and Gross Motor Function Classification System (GMFCS) levels for ambulatory children with CP.
This instrument was one of several studied in a prospective, multicenter project of ambulatory patients with CP between the aged 4 and 18 years and GMFCS levels I through III. Participants included 338 boys and 221 girls at a mean age of 11.1 years, with 370 diplegic, 162 hemiplegic, and 27 quadriplegic. Both baseline and follow-up data sets of the completed Parent PODCI responses were statistically analyzed.
Age was identified as a significant predictor of the PODCI measures of Upper Extremity Function, Transfers and Basic Mobility, Global Function, and Happiness With Physical Condition. Gross Motor Function Classification System levels was a significant predictor of Transfers and Basic Mobility, Sports and Physical Function, and Global Function. Pattern of involvement, sex, and prior orthopaedic surgery were not statistically significant predictors for any of the Parent PODCI measures. Mean and SD scores were calculated for age groups stratified by GMFCS levels. Analysis of the follow-up data set validated the findings derived from the baseline data. Linear regression equations were derived, with age as a continuous variable and GMFCS levels as a categorical variable, to be used for Parent PODCI predicted scores.
The results of this study provide clinicians and researchers with a set of Parent PODCI values for comparison to age- and severity-matched populations of ambulatory patients with CP.
儿童结局数据收集工具（PODCI）于1994年开发，是一种基于患者的工具，适用于广泛年龄范围和多种肌肉骨骼疾病的儿童，包括脑瘫（CP）患儿。本研究的目的是确定不同年龄组和粗大运动功能分类系统（GMFCS）水平的CP门诊患儿家长PODCI测量值的均值和标准差。
该工具是一项针对4至18岁、GMFCS水平为I至III级的CP门诊患者的前瞻性多中心项目中研究的几种工具之一。参与者包括338名男孩和221名女孩，平均年龄为11.1岁，其中370例为双瘫，162例为偏瘫，27例为四肢瘫。对完成的家长PODCI应答的基线和随访数据集进行了统计分析。
年龄被确定为上肢功能、转移和基本活动能力、整体功能以及身体状况满意度等PODCI测量值的重要预测因素。GMFCS水平是转移和基本活动能力、运动和身体功能以及整体功能的重要预测因素。受累模式、性别和既往骨科手术对于任何家长PODCI测量值均不是具有统计学意义的预测因素。计算了按GMFCS水平分层的年龄组的均值和标准差分数。对随访数据集的分析验证了从基线数据得出的结果。得出了以年龄作为连续变量、GMFCS水平作为分类变量的线性回归方程，用于家长PODCI预测分数。
本研究结果为临床医生和研究人员提供了一组家长PODCI值，以便与年龄和严重程度相匹配的CP门诊患者群体进行比较。
