Cavicchioli Aline Cristiane, Menossi Maria José, de Lima Regina Aparecida Garcia
Hospital das Clínicas, University of São Paulo at Ribeirão Preto, Medical School, Brazil.
Rev Lat Am Enfermagem. 2007 Sep-Oct;15(5):1025-32. doi: 10.1590/s0104-11692007000500022.
This study aims to describe the trajectory children and adolescents experience from the beginning of cancer signs and symptoms until the confirmation of the diagnosis, based on their parents' report. A total of eight mothers and two fathers participated in the study. Data were collected through semi structured interviews, and data were subject to qualitative analysis. We found that this period is significant for parents, who are capable of recognizing that something wrong started to happen to their children, expressed through signs and symptoms. They precisely reported the chronological time of this trajectory. The challenges they mentioned refer to the different diagnostic hypotheses, the difficulty to performing specific diagnostic exams and to be referred to specialized care services. This search for health service care revealed to be a difficult journey, which permits to identify that the Brazilian Basic Health System's principles of accessibility and problem-solving capacity are jeopardized.
本研究旨在根据父母的报告,描述儿童和青少年从癌症体征和症状出现开始到确诊期间的经历轨迹。共有八位母亲和两位父亲参与了这项研究。通过半结构化访谈收集数据,并对数据进行定性分析。我们发现,这段时期对父母来说意义重大,他们能够意识到孩子开始出现问题,并通过体征和症状表现出来。他们准确地报告了这一轨迹的时间顺序。他们提到的挑战包括不同的诊断假设、进行特定诊断检查的困难以及被转诊到专科护理服务机构的困难。寻求医疗服务护理的过程显示是一段艰难的旅程,这表明巴西基本卫生系统的可及性和解决问题能力原则受到了损害。